Forum Replies Created
June 7, 2014 at 9:29 pm in reply to: Amy Berman Reflects On ‘Living Life In My Own Way’ #82790
WOW, that’s inspiring
Hi sadwife… I think it’s great that the hemp oil is working so well. My husband was also dx at age 57 and though he was able to have surgery, the surgical outcome wasn’t too good. (surgeon couldn’t get all the cancer.) He did have chemo and radiation and is now feeling very good. He’s definitely changed his diet and tries to exercise (with a bit of nagging from me!) since one of our oncs said “exercise is as important as chemo.”
I know the prognosis still remains poor, though, and just pray that I would enjoy each day that I have my husband, one day at a time, because no one knows when it’s their time to go….with cancer you can actually sort of get ready for it. You and your husband are in my prayers.
Oh one more thing–the way I handled the diagnosis was to figure out the top specialists and get second and third opinions about his situation. I’d try getting a second opinion from Sloan Kettering, maybe.
VEry interesting–I agree with what your daughter discovered on the nutritional front. (My husband has ICC and I’ve been grappling with the nutritional end of things on his behalf.) Do you/your daughter have any thoughts about coffee? My husband drinks a pot per day, and I think it’s just acidifying his system. I’m wondering if you have any input on that. (Is green tea better?)
my husband has had gout for years, and it was especially bad in the year he was diagnosed…now, after his surgery and treatment, it seems to be at bay. so maybe you’re onto something!!July 26, 2013 at 6:39 pm in reply to: Does anyone dare answer this question. Honestly? Sensitive Question. #73952
Check out Laura York’s blog…http://thecancerassassin.blogspot.com/
She was dx with stage 4 in 2010 and is a real fighter –her story has really encouraged me (my husband dx w stage 4 last april)
Dr Javle is tops, but you may also want to run your situation by Dr. Kato at NY Presbyterian Hospital (622 W 168th St # 105 New York, NY 10032 (212) 305-5101
He specializes in the most difficult cases!
My prayers go out to you and everyone else on this board. (My husband was dx last April, and though he was able to have surgery the outcome was not too good.)
Thanks so much allowing us to go through all of this with you. Your post brought me to tears. You and Lauren are my heroes.
love and prayers,
So sorry you’ve had to join this family off patients/caregivers dealing with CC. (my husband was dx april 9 2012 and had a resection, and is doing well at the moment, but i’m always aware of the possibility that the CC could return, especially since it metastasized to a distant lymph node and there is/was perineural invasion.)
Anyway–even though you live on the west coast, you may want to run your situation by Dr. Tomoaki Kato ((212) 305-5101) since he performs surgeries that no others would dare. Another great doc, at Sloan, is Dr. Fong. Of the two, I’d say that Kato is more “outside the box” and you may just want to see what he has to say about your wife’s case.
Glad we can all be here for you,
Audrey (aka betzeegirl)May 4, 2013 at 1:26 am in reply to: 37 year old male diagnosed with stage 4 CC – welcoming any advice #71542
Have you heard of Dr Kato at Ny Presbyterian? He does surgeries that no one else would attempt. I’d contact him for another opinion. Holly22a on this board is seeing him and is very impressed from what I gather. There is also a great onc at NYP named Abby Siegel, who we saw for a second opinion.
You are in my prayers…my husband was dx a year ago, and Dr Fong at sloan operated on him. (margins weren’t clean and he had nodal mets–BUT…he’s doing great at the moment, so we’re just enjoying each and every day!!)
Audrey aka betzeegirl
I googled Kato just now and here’s his contact info:
Dr. Tomoaki Kato
622 W 168th St # 105 New York, NY 10032
(212) 305-5101March 23, 2013 at 8:45 pm in reply to: Cholangiocarcinoma.org Statistics (CONTAINS SURVIVAL STATISTICS) #67730
hi! thanks for all this work!! i’d love to take a look, but i think you’ll have to upload that file…it’s pointing to your hard drive
mary– my husband sees dr goodman and we like her. kris–have you ever thought about dr abby seigel as a second opinion? we LOVE herFebruary 9, 2013 at 2:06 am in reply to: Perineural Invasion and Preoperative Serum CA19-9 as Predictors of Sur #69005
hi gavin! i can’t access this journal article (some i can, since i’m affiliated with an academic institution–my institution doesn’t subscribe to this one.) can you tell me if PNI WITHOUT elevated pre-op CA19-9 is prognostically significant? thanks!
WOOHOO!! So glad to hear that news, holly!
This is really upsetting. Others will weigh in, but I’d suggest that you contact Dr. Yuman Fong of Sloan (he did my husband’s surgery and does difficult surgeries) and Dr. Kato of Columbia Pres (he attempts surgeries no one else will do) just to make sure surgery isn’t still a possibility. Let me know if you need more info. And I’m praying for your sister and her family.
God Bless and keep you.