bgomez
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Hi Everyone,
My name is Beverly, and I writing on behalf of my 76 year old mother, Edna. My mom was diagnosed with Cholangiocarcinoma when she was living in Hawaii. They treated it with chemo and radiation and she had a bad response to the chemo. For a while the cancer seemed to actually be a little smaller but most recently it has grown larger and there are spots in the peritoneum. She is now receiving care at the Stanford cancer center. However, they are recommending either chemo or hospice. My mom is still a vital woman and we don’t want to give up just yet. I have contacted someone at MD Anderson and I am hoping that she will be a candidate for immunotherapy. I have read that this cancer is very common in Asia. Does anyone know anything about any international clinics that treat this type of cancer? Are there any ongoing trials that she might be able to get into? It is really interesting to read about this disease in veterans. Living in Hawaii, raw fish was a common dish and my mom spent time in Japan as well – just wondering how this all came about.
Kind regards,
BevMy mom had liver tests done in June as part of her Wellness exam and everything was fine and then 1 month later she became jaundice. Based on the scans and blood work, the doctor said it was klatskin’s tumors. The doctors tried to do an Endoscopy but ran into an ulcer and weren’t able to finish and the next biopsy came back negative. However, 2 doctors on her team are very confident that she has this disease. She recently had tubes put in to open her bile ducts and her jaundice is slowly getting better.
Since the results for the cancer have not been confirmed the doctors are recommending the following options:1. try to clear up the ulcer with antibiotics and try another endoscopy
2. try to another biopsy when they re-do the tube
3. proceed with radiation and chemo to shrink the mass – even though they are not sure if it cancerousMy mom is based in Hawaii and I am in the Bay area. I was thinking of talking to Stanford but I just saw something on this fabulous website that USSF might be a better option.
