bhilton
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Hello again,
Thank you for your useful responses
I am following your recommendations for timing of meds it makes sense when you think about how they work. Thank you Marion.
Hi Gavin,
Thank you for your comments on nausea.. Ben has tried a number on anti nausea meds and is currently on metaclopramide, it doesn’t seem to be having much effect. It is diagnosed as anticipated nausea. He is managing soft foods e.g. Porridge, smoothies, scrambled eggs, liquidized soups etc. Anything that needs to be chewed is a problem.
He was in so much pain leading up to the appointment with the consultant last Wednesday that they decided to admit him to Christie’s for test and discuss pain options. Another CT scan was done and blood tests. The pain management team suggested a coeliac plexus block which he is considering. The results of the scan showed progression, measurable increase in the lymph nodes and at the tumour site. He discharged himself on Friday evening.
Dr Hubner is planning to start Ben on Oxyplatin and 5Fu on Wednesday next week in the hope that it will bring it back under control.. He referred him to the Clinical Trials Team at The Christie. We went to the appointment on Tuesday where we learned a great deal. The consultant Emma Dean was brilliant. Unfortunately the trial wasn’t suitable for CC sufferers. However, she asked for consent to use a sample of Bens biopsy for gene analysis, which he gave. Hopefully this can open up other options.
Ben’s mood is very low and he is struggling to get out of bed.
Thank you all again just for being there.
Best wishes
BevThank you so much for your speedy responses. It is of great comfort to know this site is available to gain support and positivity from. Although, very sad to think you have all been affected by this destructive disease in one way or another.
Thank you Joan for the recommendation of Izumio hyrogenised water, I will research it in the U.K.
The oncologist my husband Ben is under is Dr. Richard Hubner. He is a member of Professor Juan Valle’s team at The Christie Hospital Manchester. We have an appointment with him on Wednesday to discuss the way forward. We are trying to get the pain and nausea under control to enable him to make the consultation. We have been advised to increase the oxycodone from 20mgs to 40mgs twice a day. Fingers crossed.
Ben was prescribed creon after his surgery but it created severe abdominal pain so was advised to stop taking it. Maybe he can try a different brand.
Thank you for taking the time to read and reply to my post.
Good wishes to you all.
Bev
