bonnie5
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So sorry to hear this Wilma. My wish is for you to have peace and know how much you meant to him in this his last year with you. My thoughts and prayers are with you today.
I have the sweating often but have never had any fainting episodes. I have been light headed before due to lack of food. If he doesn’t have a stent he may need one or may need a stent replacement. I have a metal stent and have no issues with it. It was put in, in November replacement for a plastic one. The plastic ones are supposed to be replaced every 3 months. He may also need to eat more. Carnation instant drinks are great if eating is an issue. I also am a fan of butterscotch pudding
Hi Willow,
Due to the cancer traveling from the bile duct to the head of the pancreas and throughout the liver I am inoperable. The were initially hoping to do a liver resection but the liver blood and entire liver is cancerous so surgery is not an option. Due to the severe weight loss chemo and or radiation is not recommended. The oncologist feels that my attitude will get me further than any chemo will. I am happy with the decision as my quality of life is good.Hello,
I was diagnosed in September with final diagnosis of inoperable extrahepatic cc. The originally tumor in the bile duct blocked the liver therefore I was hospitalized with jaundice. The tumor traveled throughout the liver and head of the pancreas. There was hopes of resection until they did a PET scan and found the entire liver and liver blood was cancerous. I was sent to oncology. The information I was given by oncology was single dose gemtacide (sp) possible but not advised. Due to my severe weight loss they felt it would do more harm than good. I have a very positive outlook and am determined to live life as full and happy as possible. I do most everything that I enjoy except work. My job is working with special needs children, it is physical as well I would be exposed to many viruses in a school setting. I am on Long term disability. I am on Hydromorphone for pain and it works very well. After taking some other meds for side affects of pain meds I finally take lactulose for constipation issues and that works great. I am mostly pain free, and have reasonable energy levels. I eat small meals throughout the day and am maintaining my weight now. I had lost 50+ pounds prior to diagnosis I now weigh 77-81 pounds. She needs to keep eating that is the most important thing. I am 49 years old and have three boys ages 26,20 and 18. We live our lives as normal as possible. I have done and continue to do a lot of volunteering in my community. I was recently awarded “Maritimer of the week” on the news. You can find it online at atlantic ctv news.ca click the section “Maritimer of the week” that was a very special moment for me and was a complete surprise! I feel that I have very good quality of life. I feel better now than I did when I had my diagnosis. Since diagnosis I have traveled to Ontario twice from Nova Scotia to visit family. I have a lot of support from family and friends. My community is great! I look at this as an opportunity to do what needs to be done say what needs to be said and make sure that the people I love and care about have some good memories to have and share! I feel better now then I did when I was diagnosed with great pain management and a great attitude.
Hi everyone,
Well to start off the Dr. said I can take the Vidatox. It won’t hurt me or interfere with my pain meds. It is just a homeopathic med, not likely any good but why not take it. Anything is worth a try
You can only get it in Cuba. It comes from Scorpions and is blue scorpion serum. I am going to take my first dose today, you are supposed to take 5 drops under the tongue twice a day. I will keep you all updated on that.
As for the chemo, now that I have the pain under control and am able to maintain my weight I am going to revisit this. The Dr. felt that if we did do any chemo and all it would be single Gemcitabine. He felt that with the huge and continued weight loss it would do more harm than good. At the time I agreed because I was so weak and tired but now I am doing well. Keeping my food down and a steady weight of 77-81 pounds. I am stage 4 extraheptatic CC. Tumor on the bile duct, head of pancreas and all throughout the liver. The liver surgeon I have is awesome and soooo really wanted to do surgery especially because of my age. I am really glad that I decided to join this site. Just having people that know what the heck CC is helps because the first reaction of people is that they have never heard of it. I live in Nova Scotia, just outside of Halifax. Hope this post isn’t confusing. I am trying to answer all the responses. So happy to have responsesHi Lainy,
Yes I think I have the posting figured out now. They are not giving me anything. No chemo as I am not a candidate but my friend brought me the Vidatox from Cuba. If you look it up of course it says it shrinks cancer tumors. I will let you know what the Dr. says. I have been reading the postings on here for a while now and find it very informative. So I thought I would log on and tell my story.I had a plastic stent. They said they would replace it with a metal stent if I was not a candidate for surgery. I had the metal stent put in. That was done in November. They told me that the plastic stents don’t last and have to be replaced. I have had no problems with the metal stent. As for the chemo I am not a candidate for that so cant speak to that. Hope that is helpful.
