bosco54

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  • in reply to: CPE therapy #20354
    bosco54
    Spectator

    Hi Carol. Hi Jeff. thank you both for the kind words.

    Cindy has bounced back considerably. the blood infusion really helped
    and the pills she is taking for ascites, lasix and aldactone, seem to be
    helping with the fluid backup. she was able to get chemo thursday and
    is handling it quite well. she will get a filgastrim shot on monday. her
    chemo consists of iv infusion of FU-5, heparin and oxaliplatin, then
    continuous FU-5 infusion for 48 hours via an external pump.

    Carol, sorry your Charlie isn’t feeling better. i hope that turns around
    soon and that he has a good scan. your questions are so valid and
    familiar. i wish i had some answers for you. Best to you and yours.

    Jeff, what great spirit you have! Keep up the good fight!
    Enjoy Maine. have u ever been to the lobster shack at two lights
    in cape elizabeth? we went there for the first time and really enjoyed it.
    Maine diner was great too. have a great time.

    in reply to: CPE therapy #20351
    bosco54
    Spectator

    Hi Jeff, i hope you are doing well. read that u are going to maine. i just got
    back from higgins beach (south portland) for 3 days with my sister and
    mother. we love maine. hope u have a great time.

    cindy, my sister, has had a rough couple of weeks. after learning that her tumors in her liver had shrunk after the 5th round of fu-5 and oxalyplatin
    she devoloped ascites for the first time ever. she has been drained twice
    and also due to the chemo she has needed a blood transfusion. we see
    a gastroenterologist today. our oncologist said he may discuss putting a
    shunt in for the ascites problem, but warned it is not foolproof. she is
    trying two medications first to try and solve this problem. otherwise she
    is in minimal pain, with fatigue and always being cold being her main
    complaints. we are glad she has had very little neuropathy from the
    oxalyplatin. it is roughly 5 years since her diagnosis and we are thankful
    she has been able to live a relatively normal lifestyle.

    i will let u know if i can find anything more on cpe. sure wish sis could
    try something other than chemo. take care.

    in reply to: LOOKING #17858
    bosco54
    Spectator

    thanks sara. he is in the same office but we will consider.

    in reply to: need help deciding #15957
    bosco54
    Spectator

    thank you jeff and sara for your kind words and helpful insight.

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