bostondogmom

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  • January 22, 2010 at 3:57 am in reply to: Update re: mom’s cc progression #34900
    bostondogmom
    Spectator

    Thank you so much for the kind words and suggestions. I will continue to rub my mom’s legs. A hospital bed arrived today that should help elevate her legs more.

    You all are a total blessing to both me and my mom Eleanor.

    June 7, 2009 at 3:32 am in reply to: new member #28688
    bostondogmom
    Spectator

    Hi Support Group,
    I am in my 3rd week of radiation and my 6th week of Zeloda. The Ritalin seems to really help with my fatigue.

    My daughter Katherine, is a instructor of nursing and very helpful in my care. In fact, she found this web site for me, that I value very much.

    My doctors consist of Dr. Charles Petrunin, hematology oncology in Salem, Oregon and also Dr. Hennig radiologist for Salem Hospital. My 4th biopsy was finally successful at Oregon Health Science Center, Dr. Billingsly, surgical oncologist did it, which is in Portland Oregon.

    All of these doctors have heard of cc, but being so uncommon of a cancer, I can’t say they are experts, but the care is good and my daughter continues to monitor.

    I have good days and bad days, and I will not loose hope or my hair!!!

    I wish everyone well and will get on this site as often as possible, my computer skills are limited. I do answer my email at Buckeleanor@comcast.net, please write anyone.

    Sincerely, your partner in the journey of cc
    Eleanor Williams

    May 22, 2009 at 5:38 pm in reply to: new member #28683
    bostondogmom
    Spectator

    Dear partners in CC,
    I love to read your responses and encouragement. No one really knows unless they have a similar battle like ours and the comfort of sharing is overwhelming.

    I do wish you all a ‘feel good’ weekend with pleasant thoughts and thanks for encouraged me and each other.

    Prayers and well being
    Your friend,
    Eleanor Williams

    May 16, 2009 at 2:56 am in reply to: new member #28680
    bostondogmom
    Spectator

    Dear supporting friends, I have been on xeloda for a month, the side effects are severe fatigue, I heard that ritalin could be of value. Do you have comments about this?

    I was diagnosed after 4 biopsies and the cc finally found was deep in the liver and biliary ducts thus not operable.I am 72 and have lived and survived breast cancer and then lymphoma three years ago.I will fight this but it is serious. Thanks for your caring involvement in my life. Sincerely Eleanor Williams Salem, Oregon

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