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thank you everyone for the great feedback! as always, I find these boards so filled with support and hope that it has helped immensely in so many ways.
my prayers are with you, I wish the news was better for you. Take care of yourself and focus on healing from surgery. Do you have help?
Mary, great news about your husband. I know a bit how it feels when you suddenly don’t have the tests that you worry about but that give you some sense of control and comfort…I had a bout of Ovarian cancer and they were watching me closely after they took one side of my tubes and an ovary but then I had another tumor and they did a full hysterectomy. Suddenly they determined that they had removed any potential problems and I no longer needed tests regularly. I wanted those tests! but it’s been almost 3 years and all is ok.
Please tell your daughter to hang in there…I had 2 miscarriages and was feeling pretty pessimistic about the chances of making it through a pregnancy, and then had my twins without any problems at all. It’s not for everyone, but I’m a gardener and it helped me to plant a rosebush in memory of my losses. I believe someone up there had decided the time wasn’t right and wanted me to wait for the twins..
Lisa, I’m thinking of you and wishing you a successful surgery and speedy recovery!
Kris & Sue,
such great news! time to put the tests aside and live your lives! have fun!
good luck with your surgery…passing on some good news, my brother just had his surgery Tuesday and I think it’s the exact same surgery you’re going to have. He’s doing beautifully, came through it very well and is now getting bored in the hospital. Was up next day and didn’t really have much pain. Could have been the heavy drugs, too, though (ask for Dilaudid). Probably will be sent home in another day or so.
So, hoping your surgery is just as trouble-free and you’re on the road to healthy days!
Thanks Jeff….I talked to him today and I guess he is showing some signs of infection and they put him on antibiotics. He’s still in hospital since surgery was just Tuesday so that’s good. All in all, I think he’s doing great and no major problems at this point. Keeping fingers crossed and praying.
great news Lisa…I’m sending prayers for a speedy recovery! I have great news as well, my brother has been cleared for surgery also, for next Tuesday. We’re really liking the new doctor at University Hospital. He and his staff and associates have been so on top of things. Done a number of tests all in the interest of making sure he’s in good shape for surgery and now he’s good to go. I’m sure he’s very nervous about it, but it’s the beginning of a new, more hopeful time!
Mr J is doing ok thanks for asking…he had to attach bag to the PCT (or is PTC) tube so the external drain is working, he thinks the internal is blocked. If he can hold out (no fever) he goes to University hospital on Thursday and they will check it out, so he won’t have to go back to old doctor. Got a much better feeling from this hospital. They followed up right away and started organizing things for him. I think he’s down a little at thought of going back in (was doing so great for almost 2 weeks!) and hasn’t been online.
Rick if you read this-hang in there!
thanks for the posts…the bile ducts were completely blocked, and they did see dilation of the ducts on the scans…brushings from ERCP and the PTC procedure, and the tissue biopsy were all negative though..this new doctor is very familiar with CC, is the director of oncological surgery for GI… sees about 1 new case of CC every week. He’s ordered another scan and also referral for a liver specialist to really check out the liver before we do anything else.
Brenda, was the PSC diagnosed before CC? if so, how and was there treatment for that? Doctor mentioned that this could be PSC..
Thanks, Belle…wherever we are seems like it will be University. Met with one of their top guys today and really liked him and his more aggressive, positive approach. His team seems to work very cohesively together too. Here’s hoping brighter things ahead!
thanks for the responses…actually met with a different doctor today who gave us more info and a diff spin. said there’s diff forms of cc, some grow masses and some don’t, just have thickening of ducts. He looked at everything and said he wouldn’t positively rule out other causes at this point, ordered a chest ct…said my brother was probably looking at surgery for whatever this is but was much more positive and definitely a more aggressive doctor. Really liked him and his staff was much more informative and communicative. Other doctor was good but conservative and not very positive about surgical cases and CC.
thanks, I think i know what you mean. Good advice.. my brother and I seemed to get the runaround he was in for a week at the Clinic. Nobody seemed to communicate outside of their own department. The nurses had no idea what the doctors were doing and neither of them knew what the radiologists were doing. Felt like you had to be so proactive to find out what they were planning for you, or not planning.
anyone else experience bad night sweats? is this normal?
thanks for the feedback and advice! really appreciate it.