Forum Replies Created

Viewing 15 posts - 31 through 45 (of 316 total)
  • Author
    Posts
  • in reply to: My Dad is gone… #27188
    carol58
    Participant

    Tess, I’m so sorry it came on so quickly. That’s great that you wrote your Dad a letter. He knows what a wonderful daughter you are. My heart aches for you. Take care of yourself.

    Praying for better tomorrows,
    Carol

    in reply to: What’s this? Good News in the Grief Section?? #27168
    carol58
    Participant

    Sounds good Lainy. Thank you and Teddy for working so hard at the convention. Hope you’re having a great week!

    Mysterious ways for sure roma35.

    Carol

    in reply to: Carer – what does that entail #26986
    carol58
    Participant

    Ralf, I don’t think I do anything extra for cleaning. I still can’t get the dusting and vacuuming done much more than once a month – that’s usual, but I do clean the small half bath that Charlie uses attached to our bedroom daily. So many medicines, his aim is off if you know what I mean. I change all the hand towels in the house every couple of days and I keep disinfecting wipes in the kitchen and both baths to use every couple of days and lots of hand washing for everybody. We have 3 inside/outside cats and an inside dog. They’ve never posed any problems, just lots of love. I shower as normal. I hope this helps. I’m sure you’ll both figure out what works for you.

    Prayers for better tomorrows,
    Carol

    carol58
    Participant

    Hi Pam, you’re always in my prayers. This must be so hard to see your Mom like this. Let me know if her itching intensifies. Charlie has had an awful time with that. Be careful on the road and take care!

    Praying for better tomorrows,
    Carol

    in reply to: Shirley – My Sister #26065
    carol58
    Participant

    Teresa, love the picture of you and Shirley. You can see the love and strength of two beautiful, wonderful women. I know you miss her terribly. I feel negative some too, but everyone here puts up with me too, no matter what.

    Praying for better tomorrows,
    Carol

    in reply to: CC and Intimacy #26938
    carol58
    Participant

    Thank you Kris and Rose for bringing this up. Unfortunately for us, the actual sex doesn’t exist anymore because of all the medicines, weakness, progression of the disease. We so miss that. Nothing better than that and all the things leading up to the actual act and after when we laugh and giggle and fall asleep in each other’s arms. I know Ron, I want my Charlie back too. It’s miserable going without all the little kisses and hugs and pats through the day…married 26 years, always affectionate and loving. It feels like some kind of withdrawal. Thanks for letting me share – never thought I could say that. Love to all.

    Carol

    in reply to: My update not positive #26382
    carol58
    Participant

    Hollie, I’m so sorry Sophie and your family are going through this. You and Sophie are both so special. I hope you’ve been successful in getting a plan in place. Hugs and love to you.

    Carol

    in reply to: Pain after Stent Placement #26776
    carol58
    Participant

    Rose, I’m sorry you’re having pain. Charlie has never had a stent, but from reading on the site and your description, that sounds almost unbearable. I know how I’ve had to fight for so much with this cancer for Charlie. I would advise insisting that the doctor see you ASAP to get this stent problem under control. Sorry to be so blunt, but just sharing from our experience, we’ve had to do that more than once, not with a stent, but with many other things. Do you have someone close that could also advocate for you and help you since you are the one actually dealing with the stent pain? Once you get the stent under control, I’m sure you’ll feel so much better. You may want to look into other doctors. We switched doctors early on and Charlie says if we hadn’t done that, he wouldn’t be alive today. Not sleeping and the pain you’re having are totally unacceptable and your doctor needs to address it today. I could write a book on itching because that’s been one of Charlie’s major problems. We started with Benedryl, all the prescription antihistamines none of which worked. We tried about 20 different creams. Gold Bond is the only one that worked and it was only temporary. We then moved on to Remeron which didn’t help, but he continues to take it because it helps a little with sleep. By the way, I went to the doctors with all of this from my own research. (A lot of doctors don’t know much about cc.) I read on this site from Sue in the UK that Rifampin was the only pill that helped her husband. Our oncologist refused to prescribe it because it might cause some liver damage and we thought well at this point, the liver is pretty damaged already, Charlie just needs some relief. I’m not talking normal itching. His was intense to the point it was taking over his life. His eyes, ears, face, scalp, everything itched and it was really lowering his quality of life. So I asked the Hospice doctor (Charlie’s at home with Hospice coming weekly) and he prescribed it. It took a few weeks, but with 2 150 mg capsules a day and 30 ml Phenobarbital at night, the itching is pretty much under control. Just my opinion and in our case, but the antihistamines and cream don’t really address this type of itching. The Phenobarbital affects the central nervous system and somehow short circuits the message of itching from the skin to the brain. But the Rifampin is the real winner with us. Rose, you need to be seen before March 10. Please keep us posted. Praying for you.

    Carol

    in reply to: talk with doctor #26629
    carol58
    Participant

    Dear Janet, I’m so sorry about your husband. I pray that today is a little better for you. I imagine a little of what you are dealing with. My husband Charlie isn’t doing well and is at home with help from Hospice. We’re not where you are, but please know my heart goes out to you in your time of sorrow. We also have our two kids, 18 and 20 at home. I wish we could all pop in and help you. It would be good therapy for all of us too! Wish I could give you a big hug. Take care as best you can and however you feel is okay.

    Sending love and strength to you,
    Carol

    in reply to: Back from the oncologist #26678
    carol58
    Participant

    Hey Kris, I’m so glad you’re feeling good. I’ve been worrying about you. I know you miss Peter as we all do. All good thoughts and prayers to shrink the tumor!!

    Love, Carol

    in reply to: A Wife’s Grief #26695
    carol58
    Participant

    You all are amazing! That was a really bad day, the worst yet. I just wanted to crawl under the bed and make everybody and everything go away. Thanks for all the prayers and good wishes. I can feel my strength coming back as I read your encouraging and heartfelt words. I will make it and get through this!

    Janet, I have always wanted to live on a lake or pond where I could hear the water gently lapping and hear the frogs croaking in the summertime. I’m sure your swim helped you cope a little. It sounds lovely. I wish you strength too.

    Carol

    in reply to: Yet another newly diagnosed cc #25310
    carol58
    Participant

    Hi Rose, if you continue to itch, you can email me directly or on this site and I can give you ideas on all the things we’ve tried on Charlie. I hope you get some relief soon from your stent. I know you must be reeling from being newly diagnosed. There are so many caring people here to help you with questions, support, whatever you need.

    Carol

    in reply to: “Bending the rules” surgery scheduled #26128
    carol58
    Participant

    Suzanne, so great to hear from your sister. Hope you have a great recovery period and out and about before you know it. Keep on updating!

    Carol

    in reply to: Grieving and Thankful at the same time #26227
    carol58
    Participant

    To all my dear friends, there’s just no words to express my gratitude. You’re always willing to listen and support or just let me cry and rant. Thank you all so much. If I didn’t have you to turn to, I’d be more of a wreck than I am.
    Tanoland, I’m so sorry. I know you miss your sweet sister terribly. Lainy, Darla, Jan, Marion, Karen, Joyce C., JoAnn, Pauline, and our precious Jeff G. thank you for your kind words of wisdom and strength. What a blessing that Charlie continues to be pain free.
    I close my eyes and imagine Charlie, Jeff and Rob walking down a golden path together on a beautiful spring day heading to the arms of our Dear Savior. What courageous wonderful men they all are!

    Much love,
    Carol

    in reply to: Our fighter finally went home #26169
    carol58
    Participant

    Dear Heather,

    I’m so sorry. I pray for God’s comfort for you and Emilee. Lee was a wonderful man and fought hard against this.

    Carol

Viewing 15 posts - 31 through 45 (of 316 total)