carol61

Thanks guys … Referral went in today for Marie curie nurses to come and do a palliative care assessment …. I eventually had the very hard discussion with them today, very sad realisation but they know it’s the right thing … Mum and dad just in denial … My heart breaks for them. We had a nice time yesterday as I had printed off lots of photos of mum dad and the kids for them so they enjoyed looking through them …. Appreciate all your support.
Hugs to you all
Carol
Xxx

Thanks guys, dad has been taking laxido to help with constipation but getting a balance doletes proving difficult. I’m sitting here with dad just now while my friend has my mum out for a wee change of scene , dad is sleeping and very twitchy. He started feeling sick yesterday and still feels sick today. He’s a wee soul and watching him sleep pulls at my heart strings . What a horrible disease this is. Thanks so much to everyone for your continued support.
Myself and kids coming over again tomorrow for some food and company with mum and dad. Hubby Ian flying to Mexico with work tomorrow for a week so a difficult week ahead of us. Only looking at a day at a time though as you guys suggest as when I look further forward I get overwhelmed. Thanks for being here xxxx

I was overwhelmed to wake up this morning to your kind messages. It made me feel that I’m not alone. Yes dad is suffering from bouts of constipation but he has medication to try and help this. Finding a balance though is proving quite difficult. We tarried him on all his favourite foods and he’s gone off them one by one. The meal he’s enjoying most is his porridge in the morning but now my mum has to feed him this and his hands shake quite a bit. We have endure drinks and smoothies which are high in calories and nutrition and he will take one of them a day and sometimes one of the orange drinks too. He is due back to see his oncologist on wed next week but I don’t know if he’s got the strength for mum and I to get him there by car. We have a wheelchair etc for him too as dad funds the ambulance transport to sore on his back as he has tumours on his spine but they managed to shrink them back a bit with radiotherapy.
I can’t thank you all enough for your continued support an once this horrendous journey and u send my love and support back to you all.
Carol xxxxx

Hi guys
Just a wee update on my dad. Appetite quite poor as is mobility. He is struggling with his vowels etc too . Carers in 4 times a day which helps mum a bit although she’s starting to look worn out. Referral going in next week for Marie curie to get involved as I feel my mum and dad need that support as we are still not talking about dad having terminal cancer which is a constant strain. My husband kids and I go over every weekend for a family meal (although dad doesn’t eat anything) and I visit him every day for a couple of hours. My mum is so strong and I’m so proud of her!! I’m emotionally up and down but I feel if I just concentrate on next 24hrs I feel I can cope better. Thanks for allowing me to vent as I feel no one really understands what we are going through and I don’t have any siblings to discuss this with.
Hugs to all
Carol
Xxx

Thanks Gavin …. Your kind words give me strength to help my mum and dad and family cope as well as we can with this nightmare and as you say hopefully lots more good times ahead as well .
As always appreciate your support and kindness .
Carol
Xxx

Thanks Marion, Kris and Gavin for all your kind words.
My dad’s appetite has improved slightly so hoping the steroids he has been put on are doing the job!! Can anyone give me a rough indication of life expectancy? The district nurse was taking to my mum and dad yesterday about them being aware that Marie Curie Hospice is available is required as time goes on. Mum and dad were both horrified and very upset as I don’t think they expected to be having this conversation so soon….thanks for bring my lifeline just now xxx

Thanks Marion for your kind words xx