carolyn
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RANK….I am very sorry to read that your Dad is going thru such a terrible ordeal from this disease. This poor man, who was once so strong and independent, must feel such emotional pain not being able to do what he used to do. At times my brother would get delusional and say crazy things and we would get worried that he might not snap out of it……but he always did. The doctors said many things could have caused his delusions (the medicine, lack of oxygen to brain, not wanting to accept what was happening, etc.) He doesn’t get them anymore since he is now at home under Hospice care. Just know that whatever your dad says, he really loves you and your mom. Just sit by his side and write down your thoughts to share with him at a better time. Love can always be communicated thru silence. This disease does NOT take that away from us. Peace to your heart. Carolyn
Hello – After reading all of your stories, I am just amazed at your courage and strength in dealing with the tremendous sadness caused by this monsterous disease. My brother was dx with CC in 3/08….had his liver resected in July 08….and this cancer has already returned to his pancreas and small bowel, heading for his lungs. Hospice will come on Thursday and he has been given 3 to 5 weeks. His hope is to make it to the elections so he will know who our next president will be. He can’t eat anything and is getting so thin……just wasting away before our eyes and nothing we can do. I hope I can share your courage, but right now I just can’t stop crying. He is only 66 and a great guy. I hope that he will not suffer a lot of pain……..my heart is breaking for him and for everyone who suffers from cholangiocarcinoma. Seven months ago I never heard of this disease….now I can pronounce it, spell it, and hate it.
Hi Lainy: I just sent you a letter to Ophra. It might be a little long, but I
can’t stop talking about this devasting disease that ruins so many lives. It is a rare cancer that needs to be addressed by the American Cancer Society. My 66 yr old brother just started Hospice today and I can’t stop crying.
