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September 24, 2015 at 8:12 pm in reply to: Stage 4 cancer…Cholangiocarcninoma….My heart broke. #88172carrierSpectator
Hi Lainey-
Yes please, will you post the Signs.Thank you!!!
September 16, 2015 at 7:31 pm in reply to: Stage 4 cancer…Cholangiocarcninoma….My heart broke. #88170carrierSpectatorMaggie-
I totally feel your pain and frustration with this monster of a disease. Your father’s story is very similar to mine. As like yours, my father went into the ER on Sept. 16th with terrible side pains. He had gone to his general practitioner a week earlier with the pain and they gave him some medicine for acid relief hoping that would help. At first all the nurses just assumed my dad’s pain was due to gallstones but after a CT scan was done they could see a mass on his liver. He showed no other signs or symptoms. On Sept. 18th 2014, he was diagnosed with stage 4 cancer and by the next week we had him in MD Anderson seeking treatment. They put him on a 6 cycle treatment of chemo hoping it would shrink the mass small enough to perform surgery. My dad got through 4 cycles before things all went down hill. On Dec. 18th 2014 we were told the cancer cells had spread to his lungs and nothing could be done. The doctor said he had less than 6 months. He was taking home and put into hospice care. In the early morning of Dec. 20th my hero, my father passed away.
I never in a million years thought I would lose my father like that and that fast, he was healthy as could be a few months earlier! This disease is just an evil aggressive monster, that shows no discrimination to anyone.
Since then my mother and I have read and reread his doctor reports/notes, we have scoured the internet looking for info. We have so many questions that I feel we just will never get answers too.
But I do feel some peace knowing my dad is always with me, just like your dad will always be with you.Carrie
February 25, 2015 at 10:08 pm in reply to: Asbestos: a hidden player behind the cholangiocarcinoma increase? Find #68882carrierSpectatorMsargent1- Did your father’s doctor think the two could be related??
February 18, 2015 at 8:55 pm in reply to: Asbestos: a hidden player behind the cholangiocarcinoma increase? Find #68875carrierSpectatorMy father worked for the railroad for 41 years and was exposed to asbestos for many years. He passed away from this monster of a disease in Dec. 2014, only 3 months after being diagnosed. I too was wondering if there was a connection between the asbestos exposure and CC.
carrierSpectatorAs of right now they said surgery isn’t an option but the doctors did say that if the chemo does it’s job and shrinks the tumor than they may be able to go in and try and get it out.
Again I just want to thank all of ya’ll, this community has been so much help and given so much knowledge!! It’s hard to get up to date info on this disease on the internet, I seems to be more comforting coming from people with experience with this disease. -
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