celia-capuzzi

Hi Molly, I am glad to see another new person in the group. While I have less experience with some of your issues, I did have a couple of thoughts. First, I mentioned my initial experience with my ONC, I did stick with him and interactions got better. He has a nurse practitioner who we met with every third chemo visit and I explored switching to another doctor. She asked me what my concerns were; the next visit with my ONC was much better and I’ve continued with him ever since. I think she might have talked with him. Don’t know if you have others on your team that might help. I know docs can be difficult and feel lucky that my problem was resolved.

The other thing you mentioned that resonated with me was your using tumeric. I’m not suggesting that you don’t try it, but I found that many of these things cause me to have belly pain or mimic some of my initial symptoms so I have become leery of trying new things. Just a comment.

Thank you for sharing.

Celia