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Hello Charlene and Amilcar,
My father has been battling this disease since June 05. The drs gave up on him at that time. They attempted resection in Aug 05 and the dr came out of surgery and said, it will not work. I can’t tell you when he will die, but eventually. I wanted to tell him, so will you!
We started doing independent alternative things and he went back to the doctor Dec 05 and one dr said, oh you are still alive. THEN they suggested chemo, THEN they wanted to put their hands in it to help him!
Whenever he goes to a new dr, they say you survive this good for 1 year, whatever you are doing, keep doing it. Its been 2 years.
One dr said, you have gall bladder cancer recently. he doesn’t have a gall bladder. The gall bladder was removed in 05, and free of cancer!
Many drs are just ignorant. They don’t know EVERYTHING, contrary to popular belief. Thats why they themselves die!
Basically, this disease is rare and we need to just put our heads together, stay positive and try what we can that is working, in conjunction to some “positive” things some drs are doing, to fight this disease.
Don’t be discourage by what drs say, every case from what I have observe is different. Keep fighting and ask many questions of everyone.
Thank you Kris.
Hi Mary, I am unsure of the ’cause’. Drs do not know either. When we ask question(s the drs do not know, they greatest explanation I have heard is, “Well as a “cancer” patient, he is different from you and I” (OK) Instead of just saying “I don’t know”- The drs are only human!
Anyway, the dr advised us yesterday fluid/infection is outside of the liver area. They named the infection. (I can’t remember) but advised they are giving him the correct antibiotic for it. They will give him a strong (spellling unsure) penicilum when they send him home. He did eat a little this morning. Hopefully, he continue to get strong and come home.
About 1 year ago, he had an unknown infection and they inserted a tude in his chest area and it was drained. They stated it was a foreign infection. My family and I, upon our return from Aruba, we went to his home right from the airport. I am unsure if we carried ‘germs’ on our clothing..but any rate he bounced back from that.
I hope all goes well with your husband tomorrow.
I am sorry to hear about your husband. My father, David Cook, has problems with the stents also, his liver was FULL of fluid and he had an infection. They are now draining the liver. The inserted another tube in his abdomen. Yes, painful ordeal. He is still very weak and hardly eating but overall should recover from this ‘set back’ Hopefully, he regain his strength soon.
I hope your husband gets better as well and his case is not as drastic as my father’s.
Yesterday, they inserted another hole in his abdomen, directly into the liver to get fluid/infection drained out. He was in such terrible pain. Today, his pain has subsided but he is resting better. He still not able to move too much, but overall, he has improved.
Thank you so much for your care and support.
My dad has been on antibodies (sp unsure) for 2 days…they well do surgery this after noon to drain fluid near / around liver. I have this relieve the pain he has had.
He had fever last Thursday and Friday, and no fever since that time.
I will post an update after his surgery today to drain fluid.
He wasn’t having all this pain, until they changed the stents on Friday. Maybe someting is also ‘out of place”?
Sorry to hear about Patty. I really hope that all goes well for you both.
Sorry to hear about your father. My father also has cc for 2 years now, diagnosed June 17th, the worst day of my life. However, he has a good appetite and taking supplements. Try to encourage your father to eat small portions and drink plenty of water. My father was on gemzar and xeloda and we should get results of ct scan from June 22 soon.
Great News Jeff!
That has really made my day.
My father was on CAAT for about 7 or 8 months. (from about Sept 05 – April Apr 06)
He is still doing well. I advised him to do exactly what was outlined. He gained strength and is doing well after the amino acid reduction as the drs wasn’t willing to try anything until they saw him doing much better than before. He continues to take the supplements we purchase on our own. I haven’t found any other formula for less, unfortunately. Plus at that time, we were paying COBRA insurance.
We have good results so far. We will have another ct scan perhaps in a month because we had to change medical services as his COBRA is exhausted.
They were not able to remove the tumor as there were lymphnodes involement.
Yes, CAAT is expensive. But I just had to get myself on a really strict budget as I am the only child but I am married with 2 small children. My father always encourage me (us) not to live off 2 incomes. And he told him, what you make today, you may not make tomorrow. So my husband and I took to heart his words after being married for 20 years this year, and we were able to get it for him.
At the time he started, drs were not willing or going to do chemo as they said its no use. However, after seeing him doing better just for follow up visits, they wanted to do chemo. So I had him try CAAT before chemo because I was not going to just give up because the dr’s did not want to do anything.
On another note, pallative care is what they wanted to give my father. They sent him home and hospice was calling his home as well as mine. I finally called them and said he is ‘living’. He was actually shopping one day they called.
Don’t give up. As you know, everything cost money. No one is giving anything away even if it can save someone’s life.
Look into the alternative treatment. Get family members to pitch in if all possible.
Hoping the best for you and your mom.
The Amino Acid cost $900 for a month supply. The supplements average cost was about $250 per month. It was costly for me as I am an only child, but I had to do it and pay for my father’s Cobra insurance. I was ‘able’ to purchase the amino acid for about 7 months but he still takethe supplements.
I am an only child of both parents and I am doing ALL I can.
He is doing ok now, but if we have to start it again, I will do so. After reading other post, I think he has helped him tremendously as he could barely walk in the hospital and when I started bringing him the amino acid and proper food to eat while in the hospital, he was able to come home and gain strength.
He has really came far and he listen to everything I suggest and take everything I suggest as if I am a ‘doctor’.
Whenever I bring something for him to take, he just ask, what is this suppose to do and I explain what I have researched and he will take it.
My Dad, is the most wonderful person anyone can have for a father! All I can say is as of now, so far good.
Hello Ted and Patty,
I hope you are doing well.
My father was on CAAT. It stand for Controlled Amino Acid Theray. It is an amino acid and carbohydrate deprivation protocol using scientifically formulated amino acids. The objective of the CAAT protocol is to strategically and scientifically use the chemical reactions and interactions of amino acids, foods and nutritional supplements to alter or impair the development of cancer cells by interfering with the five basic requirements of cell formation (structure, energy, blood vessels, growth hormones and functions).
You can find more detailed information at http://www.apjohncancerinstitute.org
Now my father is just taking the supplements. He was on the CAAT formula for about 7 months. You can call and ask for Angelo also.
If you have any more questions, please do not hesitate to ask me.
Thank you so much for sharing. I hope Patty’s health continue to improve. Alternative treatment has been working for my father since Dec 05.
My father was diagnosed June 05. The drs said after attempting surgery unsuccessful, there is nothing they could do nor chemo was suggested. After being in icu for about 2 weeks, transferred to a room to be sent home, I started giving my father supplements and bring him fruits and salad daily. He started walking a regain strength. A few months of doing this and going to the drs just to hear them say what they were not going to do, they notice him looking better and jaudice free, at that time they put in on Gemzar and Xeloda. His tumor marker CA-19-9 at one time was <2. Next time it was 4. He is stable and getting around. His biggest complaint is fatique but he has an appetite and is weighing 195 lbs. Before diagnoses he weighed 240 and lost weight rapidly. He continue supplements and healthy eating habits.
The drs are saying its ‘stabled’. Perhaps they may find a cure. We just have to keep informed and this is an excellent place to share.