ceusita
Forum Replies Created
-
Posts
-
Hi Anne > Thank you for your information on DNA testing in Sweden. My husband has been a on the cholangiocarcinoma ride for over 5 years. He was doing well till recently and the last few months his liver enzymes are trending up and I do notice he is not feeling well. I wonder if I can contact them about the testing even though we live in Canada. WE live in Canada and we have so called universal health coverage, the Cancer Agency would not cover the better cocktail mixture that my husband had for his treatment. This was a shock to me to find out that there is already a two tiered system in our health care yet the average person is not aware. We are very lucky that we had the money to pay but what I found hard was to find out that the Cancer Agency didn”t offer this option to us , we got help from an oncologist that works for the agency and has a license to bring into Canada other drugs that are not sanctioned by the Agency. As far as I am concerned they should tell people if there are other options out there even if they cost because we all want the best for our loved ones.
Hi Thanks for all your warm thoughts and wishes. My husband had the Whipple done bye Dr Scudamore at Vancouver General In British Columbia Canada. Although my husband is 71 years old he had No medicals issues at all and was extremely fit. Although we have the Cancer Agency here we opted to go to an oncologist that does private as well as the standard protocol from the Agency. Because there are so few cases here I think that the Cancer agency would have just give him the basic protocol. Dr Klimo gave him Abraxacine and Gemzar. Neither of these drugs were covered by the government or my Blue Cross provider which is for extra things. The Cancer Agency claimed that there were cheaper drugs available and generic ones as well . I have read and researched that the company that made Abraxacine holds the patent till 2013. So I think that the Cancer Agency were just feeding us a line. Having lived in Canada all my life and being told that we have a great medical system I now know that this is just a line. We have spent thousands not that it matters but they should tell patients the truth and at least have more options available to us.
It was really great to hear that the Pet Scan showed no CC and Dr Klimo has told us that the Lymphoma is unrelated . Because my husband was so sick from infections extra they also have done a liver biopsy which again shows no metastisis infections etc. I think that it was the Lymphoma that was causing all of his problems but because of the CC they were concentrating on that. Thank god for the urgent PET Scan. Went to the surgeon yesterday but didn’t have the pathology back yet. Next week we should know more. Thank you all for your support.
