cherryle
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Are there any updates on your Father? My mom is having some of the same issues and I was just wondering. After being in the hospital a week to have stents put in they were finally able to do it yesterday 6-6, she was having problems with her blood clotting and it took a week for them to figure out what to give her to make it clot. She is also having the swelling problem now that she’s been in the hospital her Dr say’s it’s due to all the fluids they are pumping in her and not getting the exercise she would if she was at home. They were able to put stents in and didn’t have to leave any drainage tubes. Not sure yet when she will get to go home the Dr usually comes in around 11am so we are waiting to see. Chemo was put off last week and this week due to being in the hospital. She won
Today Sandi had her 1st dose of 5FU. Tomorrow she goes in for them to redo her drainage tube. It’s not been draining to the inside for almost 2 weeks now. Last night it even stopped draining to the bag. Her bilirubin has went from 4-6 since last check and her liver enzymes where also high today. White cells were ok. They also changed her chemo cycle she had 5FU today next week it’s Oxaliplatin then 5FU again different each week till 6-14 then she has a scan. She was scheduled for a scan 5-31 but they changed it due to her missing the last two weeks of chemo.We are all praying tomorrow brings a better day.
Jeff the OMEPRAZOLE seemed to help. Thanks!
My mom was taking Xeloda but last time they told her they were going to change it to the 5FU due to some side effects she was having from Xeloda. I’m not sure what’s going on with that. She goes for chemo and to the dr. this Thursday so we’ll know more then.
Jeff, What is the pill you take before breakfast to lower your stomach acids? I have seen on the site others talking about different herbal medicines or natural things they are using to help fight this. Can someone give me a list of these things and what they are suppose to help? Things like carrot juice, milk thistle.
CherryleIt is draining in the bag a lot. See when they 1st put it in it was draining to a bag then they got it in to drain to the duct that worked for 4 weeks. When she complained about hurting again and she says it feels like a gas pocket they told them to hook the bag back up to the drain. My dad say’s he’s been empting the bag every three hours so that a good bit coming out. She just had 3 good days last week and that was while she was in the hospital. We just knew she was going to be feeling better for a while but 1 day after being home trouble starts again. Dad say’s she’s nauseated and throwing up this morning. I just don’t have a good feeling about what’s going on. You did get lucky with having such a great dr. The only time they talked to the Dr on the phone was when my dad got tired of them not calling back and blew up on the girl answering the phone the Dr did call back then. The Dr didn’t even see her last week when she was in the hospital for 4 days, his team saw her. Thanks for the support. I’m glad I found this website. Mom’s a registered user but has only posted one time. She never feels well enough to get on the computer anymore.
Cherryle
Thank you Mary. Our biggest problem with the Dr is that when you call the office during the day it takes forever for them to call back (is it this way with all dr’s) and then it’s just been take more pain meds. I don’t understand why they are not having her come back in and check the drain. If she’s having to hook it up to the bag then something has to be wrong inside wouldn’t you think? I am just lost for words on how I feel she’s being treated. I live 100 miles away and am unable to be there everyday. I have to hope she and my dad will speak up to the Dr. How would you go about getting 2nd opinion with chemo already being started and the drain already being in. Would another Dr see you while under another Dr’s care?
Jeff, I spoke to my mom a little while ago.She’s not doing well. She’s had to hook back up the outside drain bag. The Dr seems to think they may have been some of her pain. That’s one thing I’m concerned about is the dr’s care she’s getting. When they called today they only told her to start taking two pain pills instead of one. How long will the drain last with out having to be replaced. She is seeing a Dr at UAB in Alabama. Chemo was put off for this week due to her still taking antibiotics. She’ll take these daily till Sunday. The nurse had to come back out yesterday due to the vein clasped and they had to take it out and just give her the antibiotic directly. A different nurse came today and put in another IV they hope it works for a day or so. Things are not looking good. I wish she could get better care from her Oncologist are they all this way?
Jeff, Are you taking the oral Xeloda? Have you heard of the liquid form of that? Have you ever experienced problems with gas while taking chemo or antibiotics? She
My mother has been diagnosed with Cholangiocarcinoma. She was diagnosed in Feb.07. She started chemo in March so far she has had 2 rounds of Oxaliplatin with 2 rounds of Xeloda also. After the 1st dose of Oxaliplatin on 3-29 and starting Xeloda on the 30th she went in the hospital April 2 to have what we were told a stint put in. They were unable to put it in where they wanted it but did put it in. It turned out to be an external drain with a bag. Tuesday they looked at what was done to determine if it was reducing the enlargement of the bile ducts. They wanted to wait till Thursday to try again. On Thursday it was a success they were able to get the drain to the bowl and take off the external drain. She was able to go home Thursday evening. This was a success due to lots of prayers. We thank God everyday.
On April 13th she started the Xeloda again and on April 19th she had another dose of Oxaliplatin. While at the office getting chemo she told them the problems she was having with taking the Xeloda. She was to start a new liquid form of this yesterday but on Monday evening she began to run a fever. My dad called the Dr. and was told to bring her to the hospital. Once she got there and they checked her vitals her blood pressure was 88/58, she was dehydrated. She has been there all this week. Her white blood cell count was 28000 on Tuesday but Thursday it was down to 24000 still high. They ran 4 kinds of antibodies and lots of fluids. Her bilirubin was down to 2 or 4 yesterday which is great since it was over 12 before the drain was put in. She sounded much better last night. More like she was before all the came about. This website has been great for me being able to hear other people
