christina77
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Hi, hope everyone is okay, or as okay as can be today.
Sending all my love if you are having a tough day and
I thank you so much for the support I have been shown.Thank you Tia and Nancy.
I wanted to take time responding as I truly valued your words.I am re-reading your words today again, THANK YOU.
My dearest mum was worth every bit of this pain, I don’t think my words could do her justice and they way she handled this blooming cruel disease was inspiring.Tia, how are you feeling today? Nancy, how are you feeling today?
I honestly cant say how much I needed to re-read this today. Miss her a lot at weekends. But you are both right the years I got are worth this. I also need to grow up as I have younger siblings.
To everyone fighting today my prayers are going to you, I hope I don’t appear selfish, just miss my mum. Nancy thank you for ‘it is not a place to stay’, your mummy sounds similar to mine if that makes sense. Tia you sound like a wonderful daughter, I wasn’t sure what stage of the journey you and your family on from your message.
I am probably not much help at the minute but if anybody needs to rant or anything please stay in touch.
All my love to you all xx
Thank you all so much.
Reading tonight has really helped. I think the shock
Or whatever it is that gets you through week one
Has ended. I felt very alone last night even though
I was surrounded by people. Bizarrely I miss
My childhood.
I honestly hope my mums story and the fact it was 2011
The first time helps anyone.
I feel selfish saying this but I just miss her.
I actually feel Hope from you all as I know you understand and I
really am sending thoughts and love tonight xHi,
Thank you from bottom of heart to you all.
Mum lost the battle on Friday.
The funeral was yesterday, she was so loved.
I had promised her no more pain and I hope we honoured that.
Going over mind and what if’s and trying to stop doing that.
She had too much going on.
Just miss her and we are numb.
I hope the fact she was diagnosed in 2011 with gall bladder cancer and it’s now 2017 provides hope to some people.
She was the most amazing and beautiful soul, in and out, she helped so many people.
The number of people yesterday who said where can we go now for help was unbelievable.
It was so touching.
Thank you all so much and I hope today finds you with hope and love x xHi,
First Matt, thank you so much, cant express how much hearing from you has helped. I have not been on in a while as it was a pretty bad month for my mum in terms of how she was feeling mentally but a turnaround and your post will only help further. Hope wherever you are the slow descent out of winter is starting, it is good to see a little sun.
Thank you everyone for taking time to respond, I honestly cant thank you enough and I hope today finds you all having a good day.
My mum made it to oncology appointment last Monday and the fact of getting out has made a massive difference to her mental well being. Since diagnosis it seemed that she was slipping away mentally but there seems to have been a turnaround in that area. She made two short sessions to the community centre where she volunteers this week, she amazes me!!
The Oncologists attitude and treatment of my mum was so wonderful, as he always has been. She asked could she give him a hug.
Basically she has been placed on steroids, which seem to be helping, with a return date back in two weeks when her strength is up to review treatment options.
I have been researching a lot (thanks to all of your advice) and will keep doing this, I have registered onto clinical trials websites also. I was glad to get my mum to even go to the first appointment so was treading lightly.
I have lots of questions, it is quite difficult to predict what a given day is going to look like but I take it that is normal? Also my mum has said about feeling quite light headed a lot, any advice on this?You are all amazing people for responding. My family are new to this diagnosis but not to cancer, but anything can offer even if just for a rant please contact me.
Hi,
I cant thank you all enough for replying and for the good advice. It is really hard to know what to do right for wrong. I cant even imagine how my mum is feeling inside, I can only imagine it comes in waves.
Just in answer to questions and apologies also I am still trying to work out best ways to use the forum when replying, not sure to post or mail but will work it out.
Needless to say JUST THANKS.
My mum was unwell from about 2009, (consistently told it was gall stones), had gall bladder removed in 2011 and then liver resection end off 2011 (a tumor was found in gall bladder). Then check ups thereafter at different hospitals. In October 2015 she was was feeling really unwell and vomiting a lot, this was diagnosed by January 2016 and she had a bowel resection due to a blockage in the bowel.
In September 2016 she began feeling really unwell again and we went to GP a lot, she was told it could be diverticulitis, tried different diets, we felt incredibly lost as did not know how to help her or where to turn. You may gather from this my mum has met and been supported by some exceptional medical professionals but also had the polar opposite experience which is unfortunate.
So thank you Marion, Joe and Lainy for responding and in answer:
Surgery is currently not being offered
Her next appointment is two weeks time (a scan as of two days ago was cancelled as the stent so recently inserted and she was still in hospital)
Have signed up to the clinical trials sites and am in touch with specialist nurse
I will check link now Marion
Would you all know of any European centres of expertise I could contact?
Again thank you and goes without saying any advice much appreciated, best wishes.
