christineandtom
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Hi,
My husband gets tapped for roughly 5L every five days. Every dr we have spoken to has said a catheter or anything else is too risky for infection. We have gone to ER once, after a drain, infection. Nothing serious. One point to mention, we’ve recently started acupuncture and he is MUCH more comfortable. Food luck!!!
Hi Carrie,
Welcome, although I have only recently been welcomed myself to this community. My 47 year old husband, father of three, was diagnosed with icc on Aprill22 of this year. Our oncologist immediately sent us to Mayo in Rochester . We’ve been there twice. Our first visit was to confirm diagnosis and second visit (this past week) was to do therasphere (targeted radiation). My husband was symptomless other than a pain in abdomen. Since our first Mayo trip and the trip this past week (3 weeks about) the tumor has become aggressive. He is distended with fluid in his abdomen (drained twice and again tomorrow) and this will continue. He was not a candidate for surgery.
. He has lost a lot of muscle tone and is so very tired.So we are living with this, one day at a time and a lot of prayer. A LOT!
Thanks, Christine
