cjojohnson
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Thanks. She has been throwing up all weekend. My dad took her to Stanford earlier today and I am waiting to hear from him.
Any new information on XL119? My mom has been battling cholangio since Nov 2004. 12 rounds of chemo (gemcitabine & cystplain) reduced the size of the tumor such that she could have triology radiation. This was completed in 1/06 at Stanford. She has clean CT/PET scans until August, last month. There are new tumors. The Radiation Oncologist doesn’t have anything more from her. We are meeting with the Oncologist on 9/28 and looking for anything new to pursue. Thanks!
Hi everyone,
It’s been awhile since I posted. It’s hard keeping all of the various cancer forums up to date and things had been going well. My mom’s CT/Scan results last March showed that the tumor had shrunk so no treatments were scheduled. She had another PET/CT scan in June and the cancer was stable so no treatments were scheduled.
Last August, my mom started having troubles with her stomach. Her family doctor thought it was diverticulitis but when it didn’t clear up, suggested at CT scan of the stomach and abdomen at Stanford. This happened on 8/17 and the results are very upsetting. It appears that the cancer has spread to her stomach and possibly bowels. There are 2 new tumors on her liver. She had her every 3 months PET/CT scan on 9/5 and she gets back the results tomorrow 9/13. I will be with my mom at this appointment at Stanford. I am scared. I would appreciate any advice as I haven’t stayed on top of the research these last 8 months due to things going so well. I have printed off the clinical trials from the gov website.
Thanks!
Cathy
My mom had a tumor in her bile duct which we were told was benign. She went to UCSF for the Whipple procedure and when she was opened up, they determined she had cholangiocarcinoma. They ended up re-routing her bile duct and removing her gall bladder. The tumor has spread to her liver.
Here’s Stanford’s website for the Trilogy radiation:
http://cancer.stanfordhospital.com/forPatients/services/radiationTherapy/trilogy/default
