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Viewing 15 posts - 1 through 15 (of 21 total)
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  • in reply to: Dr. Jerome Canady #17791
    cksvelasco
    Participant

    Dear all,

    Although it has taken some time, here we are, my sister and I, writing to you in search for your support at this horrible time. Our hearts still ake with pain and we are still finding it difficult to open up and write about it. Our father passed away on the 29th of November after battling very hard against this monster and for 15 days post surgery. His surgery was major, it lasted close to 13 hours and it involved removing 50 percent of his liver and pancreas, gall bladder, part of his stomach and intestines. Unfortunately his body and in particular his liver was already very weakened by the disease and he didn

    in reply to: Cured of CC #17562
    cksvelasco
    Participant

    Dear Truth4u,

    I appreciate you telling me your dad’s history. My dad is 71 he has cancer of the gallbladder and bile ducts which is spreading to the middle of his liver. At the moment he has it nowhere else that can be seen. He had an unsuccessful operation on the 4th of September and he has had no chemio or radio. I understand that the operation has enormous risks. We have been explained the risks but the other prospect is bleak.

    The problem that Dr Canady has is that a lot of the people that come to him (I include us) have been turned down from anywhere else for surgery and have stage 4 cancer or very advanced or in various locations. The operations that he conducts are therefore very risky. I expect his mortality rate to be higher than other surgeon’s. However, I do agree with you that it is important to go in in full knowledge of the risks and concious of the probability of success and Dr Canady is a very confident man which can be interpreted as nothing wrong can happen. I don’t know what the answer to all this is and we are very scared about my dad but we just have to hope and trust our instincts.

    Best regards.

    Katia

    in reply to: Cured of CC #17560
    cksvelasco
    Participant

    Dear Truth4u,

    I appreciate your honesty and you coming forward. I have a few questions for you if that’s OK:
    – did your dad have an MRI before the surgery?
    – did Dr Canady explained exactly where the tumors where from the MRI? Was he truthful about it and did it correspond with the report from the radiologist?
    – how many surgeries did your dad have prior and with Dr Canady?
    and – did he have chemio or radiation therapy before the surgery?

    You answering these questions is important to us and sorry if they are very personal.

    Thanks again for your honesty.

    Best regards.

    Katia

    in reply to: Cured of CC #17556
    cksvelasco
    Participant

    Dear Truth4u,

    What type of cancer did your dad have and how far was it extended? My dad is scheduled to have surgery with Dr Canady on the 14th and I take your accusations very seriously.

    Best regards.

    Katia

    in reply to: Good News Daughter’s Thyroid non-cancerous #17404
    cksvelasco
    Participant

    Wonderful news JeffG, I have two boys and nothing could be more precious. Very relieved too that all is well.

    Katia

    in reply to: Fiance Newly Diagnosed #17240
    cksvelasco
    Participant

    Hi Kap and Sara,

    Well it turns out we too have contacted Dr Canady regarding my dad and he has told us that he wants to see him. We have booked our tickets for this Saturday all the way from Spain to see him on Monday. My dad is quite tired and on antibiotics so it will be a difficult trip for him but we feel that we need a second opinion (following JeffG

    in reply to: Second Surgery Possible? #17343
    cksvelasco
    Participant

    Dear Tam,

    Sorry to hear about your uncle’s recurrence. My dad was diagnosed with CC in September and his was also unresectable we are going to try getting a second opinion from Jerome Cannady from the Monongahela Valley Hospital in Pittsburgh. He seems very knowleageable about this type of cancer. His name is mentioned by other people in this site if you do a search.

    All the best to you and your family.

    Best regards.

    Katia

    in reply to: CT Scan 3 Month Follow-up #17019
    cksvelasco
    Participant

    Dear Jules,

    I am so sorry about your loss. I have read the research pages and what your dad wrote and he was such a great person to share all his advice and experience with everyone. This disease is so horrible. My dad was diagnosed in September and we are so scared. It is so great for people like you to be around and help. Thank you so much about the info on the DC treatment. I have sent an e-mail to the Institute your dad went to to see what they say. My dad lives in Spain and I live in London. Will keep you posted.

    My warmest wishes for you and your family.

    Katia

    in reply to: My father and mentor #17315
    cksvelasco
    Participant

    Hi Nicole,

    So sorry to hear about your dad. My dad was diagnosed in September and we are still getting to grips with the whole thing. It is so hard though.
    I have never heard of SIRT-Y90. Could you give a little bit more detail as to whether it is chemo, radio, immunotherapy? Would like to look into it.
    All the best to you, your family and your dad.

    Katia

    in reply to: CT Scan 3 Month Follow-up #17017
    cksvelasco
    Participant

    Hi Jeff,

    Well I have had a look for info on Escozul and it looks like it is blue scorpion venom that has had some success according to Cubans in treating cancer. Unfortunately, it looks like it is not widely available, the only apparently reliable source of this is Labiofam S.A in Cuba, and also it has not been approved for wide distribution (apparently Labiofam is in the process of getting it approved). Apparently other providers of Escozul don’t really sell the real product and some might sell it but in unsafe quantity. It sounds like a dead end to me unless travelling to Cuba but will let you know if I find out more.

    Currently looking into the Davanat-5FU clinical trial but our European insurance doesn’t cover the costs so not sure we qualify for it.

    All the best and keep it up!

    in reply to: CT Scan 3 Month Follow-up #17014
    cksvelasco
    Participant

    Dear Jeff,

    Great news about your scan!!!!!! It’s so inspiring to hear your story and how brave you are. Just had a few questions that I wanted to ask you if that’s OK. In the time you have been fighting this disease did you try radiotherapy and did you ever combine Davanat with any of the chemo treatments? Also, have you heard of Escozul, blue scorpion venom in Cuba being used to treat cancer?

    Dear Jules,

    What does the treatment that your dad started to have consist of? What is it called?

    Hope this message finds you both Ok.

    Best regards.

    Katia

    in reply to: Fiance Newly Diagnosed #17236
    cksvelasco
    Participant

    Hi Kap,

    I just had a look at the video. It gives so much hope. However, which hospital is Dr Canady attached to? Is he working independently? I wonder whether we should contact him too to send him my dad’s info. I was also wondering, was your best friend in a clinical trial with the Anderson clinic with Herceptin? This is something they might offer my dad as he is being treated by the Anderson in Madrid. I hope all the best for your best friend and wish you all the best of luck. We send as many positive vibes from here (London in the UK and Madrid in Spain) as we can.

    Katia

    in reply to: LONG TERM SUCCESS STORIES #16205
    cksvelasco
    Participant

    Hi Jeff,

    It’s so inspiring to hear your story and how brave you are. All the best and I hope that the taxodere works for long and you don’t feel too bad. In your time you have been fighting this disease did you try radiotherapy and did you ever combine Davanat with any of the chemo treatments. Also, have you heard of Escozul, blue scorpion venom in Cuba being used to treat cancer.

    Hope tis message finds you Ok.

    So great to have you around, specially for newcomers like me. I am off to Spain tomorrow to see my dad (he lives in Spain and I live in London which makes it really hard).

    Best regards.

    Katia

    in reply to: escazul #17053
    cksvelasco
    Participant

    Hi there, I have never heard of it. Have you found out more about it? I would be interested in finding out more. Cubans have a great healthcare system. All the best to you and your brother. My dad has suspected CC (the biopsy came out negative but the scanner shows it’s there!)

    cksvelasco
    Participant

    Dear all,

    Thank you so much for all your replies and information. Sorry I haven’t been in contact lately but was in Spain with my dad and it was all a bit busy with no easy access to the internet. My dad has had the stent put in in hospital but I was a bit upset when they told us that the only one they could do was a pemanent metal one. They didn’t know of any other methodologies. Dear Mary, is your husband’s stent made of plastic or metal? What happens if my dad’s clogs? We are now starting the process of going with the Anderson clinic to start the radio and chemio treatment and will let you know all of the progress. We keep our fingers crossed. I am just a bit worried that a month has gone by since the operation and he hasn’t started the treatment yet. How fast does this thing grow? Dear Mary, it sounds like your husband’s operation was very efficient. Unfortunately, both of my dad’s bile ducts are taken at the moment so they couldn’t do that. Anyways we keep our fingers crossed and thanks again for all your precious advice.

    Best regards.

Viewing 15 posts - 1 through 15 (of 21 total)