cksvelasco

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  • September 16, 2007 at 9:00 pm in reply to: First steps in the battle against the disease. We need directions pls #16825
    cksvelasco
    Spectator

    Dear Mary,

    Thank you so much for your prompt and so detailed reply. I am so happy that your husband’s tumor is dead. There is no reason why it shouldn’t stay like that. We will be thinking of him. We are currently considering the Anderson clinic in Madrid which is a branch of the Andersin clinic in Houston. We are trying to schedule an appointment. Fingers crossed they will have this treatment for him as the hospital where he is now doesn’t. Just to let you know Dr Gregory Gores from the Mayo clinic also agrees with this combination (radiation beam therapy with the oral form of 5-FU) as the best option at this satge. Just a couple more questions (sorry for having so many questions) if that’s OK. Did your husband have initial surgery like my dad to try to remove the tumor surgically? Did your husband have a stent put in like my dad is scheduled to have put in on Thursday? Is that stent compatible with the treatment? Finally, did your husband have the brachytherapy at the same centre?

    Thanks again for all your precious help.

    All the best.

    Katia.

    September 15, 2007 at 9:28 am in reply to: First steps in the battle against the disease. We need directions pls #16823
    cksvelasco
    Spectator

    Thanks Mary. This gives us some hope. If you don’t mind me asking, was your husband’s Klatskin tumor unresectable too , what stage was it? My dad’s apparently is stage 4 although the lymph glands don’t seem to be affected yet. Sorry one more question is Xeloda the same as 5-FU? and finally where was your husband treated.

    Apologies for the avalanche of questions. I guess not two individuals are the same but just want to get as much feedback as possible.

    Thanks very much for everything.

    Katia

    September 14, 2007 at 9:17 pm in reply to: Drug Alluding Spheres #15826
    cksvelasco
    Spectator

    Hi there,

    I hope all is better and was actually wondering about how did the procedure go. Is it something that is worth considering? What does it involve?
    All the best.

    Katia

    September 14, 2007 at 9:07 pm in reply to: First steps in the battle against the disease. We need directions pls #16821
    cksvelasco
    Spectator

    Thank you very much to all for the every useful advise. Once we have my dad’s biopsy results I will contact other consultants for a second opinion (they all ask for a copy of the report which we don’t have yet). I have also spoken with Dr Andrew Kennedy at the Wake Radiology Onchology department in NC under Wayne’s advice and he told me that in his opinion the best first treatment for cholangiocarcinoma is a combination of: Extrenal beam radiation and chemotherapy (5-FU with Davanat) both for 5-6 weeks and both done at the same time. Has anybody experienced this particular treatment?

    Thanks to you all and best wishes.

    September 13, 2007 at 9:06 am in reply to: First steps in the battle against the disease. We need directions pls #16816
    cksvelasco
    Spectator

    Thank you for the advise. We trust those that did the surgery as they are one of the best teams in Spain and they do the liver transplants in Spain (surgeon’s name is Dr Moreno) but you are right we should get a second opinion. Not sure where though. Mayo clinic?

    Thanks again.

    September 12, 2007 at 11:09 am in reply to: Radioembolization for unresectable tumors #16255
    cksvelasco
    Spectator

    Hi Wayne,

    I have found your story extremely useful and also an eye opener of what possibly it is to come.

    My sister and I found out 3 weeks ago that our dad,71 years old, and best friend has cancer of the gall bladder and bile ducts. This has been devastating for us. He had an operation 1 week ago but unfortunately it was unresectable (I understand that means that they couldn’t take it all out). I understand that they have cleaned a bit around the area but have left everything including the gall bladder. It appears for the moment that the liver is only affected in the area adjacent to the bile ducts and that the nodes around are not affected. We are wondering what to do next.

    We have heard of the Mayo and MD Anderson clinics. But now through your story we are now wondering whether we should contact Dr Andrew Kennedy of the Wake Radiology onchology centre in the US first. Could you tell us a bit more about your experience with him? Do you think my dad would be a candidate for the treatment Valerie had?

    We are also wondering what treatment is best to follow aside from procedures. What treatment is Valerie following now? We are confused because there are so many Oxaliplatin, Xeloda, Sorafenib, Herceptin (I hear there is a clinical trial conducted with this one at Anderson for this type of cancer), Davanat? We are a bit lost and don’t know what to do next? Please advise!

    Thank you so much and all the best for your next step in the battle.

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