Forum Replies Created

Viewing 15 posts - 1 through 15 (of 19 total)
  • Author
    Posts
  • in reply to: Update on Lauren #72179
    cldymond
    Participant

    Pam: Haven’t posted much in the last couple of years but want you to know that I check in frequently. I have been following Laurens’ blog and just want you to know that I add my prayers daily. Stay strong, you are a remarkable family! Cheryl

    in reply to: Update on my dear husband #52375
    cldymond
    Participant

    Nancy: Have just read your post and am praying for the “stent blockage’. Don’t let it get you down, just the rollercoaster needing to be oiled. My thoughts and prayers are with you today and always.
    Cheryl

    in reply to: update on Harmony #29550
    cldymond
    Participant

    Susan:
    I am so sorry to hear that Harmonys’ journey on earth has come to an end. Her inspiration and spirit will be truly missed on this site. As a parent, I can only imagine the loss you are feeling right now. May the angels surround with you with light and in time I pray that the memories you made with your daughter will fill you all with warmth. Thanks for posting, it must have been really difficult. You and your family are in my thoughts and prayers!
    Cheryl

    in reply to: Hello All #50071
    cldymond
    Participant

    Philip:
    Welcome to the site that as everyone says you hate to have to visit! First your photos are beautiful. What a wonderful family. Second, congratulations on the “whipple” being a success. As the wife (caregiver) of a wonderful man who was unable to have surgery … I consider this a “miracle”. Please don’t dwell on what could come, enjoy your health as it gets better each day. As you face each hurdle, you will find it gets easier. Don’t let this awful disease dictate how you live your life. Face each hurdle, jump it and go on living and enjoying your family with a new appreciation of how truly amazing leach day, each season and each year can be. I pray your recovery will be swift.
    Cheryl
    P.S. My husband Herb and I are in Calgary as well.

    in reply to: Day 55 #49406
    cldymond
    Participant

    Kris: Just wanted to wish you the best of luck on Tuesday and congratulate you for doing what you and Dr. Fong feel is the best thing. I will definitely be looking for your post under the “Good News”! We are all praying this goes really well for you. Stay positive and be well.
    Cheryl

    in reply to: Why a 3rd & 4th Opinion is Very Important!! #49412
    cldymond
    Participant

    Cathy:
    I always knew it, but am very glad that you were able to prove it!! Miracles do happen … congratulations. Hope everything goes well and I agree, everyone in this organization and on this site are outstanding and caring !!!
    Cheryl

    in reply to: Update on Doug and family. #49339
    cldymond
    Participant

    Nancy:
    So glad you posted…I have been wondering how you and Doug are doing. I’m really pleased to hear that all is going well. I have returned to work as well and know how exhausting it can be! Glad that wedding preparations are coming along, such a wonderful event to look forward to and spring weddings are so beautiful. Spring has sprung in Calgary, apparently! We got about 10 inches of snow on Friday and Saturday but today dawned with bright sun and the snow is melting …typical April in Canada!!! It gives you even more to look foward to. Anyways Nancy, your family are on my mind lots and I wish for you all a wonderful spring, and exciting (and peaceful) preparation for the big day.

    cldymond
    Participant

    Miles:
    We are in Calgary as well. Herb was told in Feb of 2010 that he should go home and “get his affairs in order”. That was by a surgeon who was unable to operate due to the extensive spread of CC. Herb has Stage 4 Klatskins carcinoma with spread throughout the liver, gallbladder and spots in his lung. Thanks to a wonderful oncologist (who told us “there is probably no cure but with Chemo and other measures (ie bile duct drain – etc) we should be able to buy you some valuable, quality time”. Herb has 2 external drains (one in the bile duct and 1 in the gallbladder and also a stent. He has been through 1 round (8 x 3wk round of Gemcitibine and Cysplatin – 2wks of chemo – one off). Although Herb has way less energy, has lost weight and is now on Fentanyl patches for pain (which keep pain well controlled but not “dopey”, he is, as he says “Doing great”. His last few scans have shown no progression of the disease, which to us is great news. No-one can tell you how long you have and if they do …Don’t trust them” Our family has adopted the attitude – Herb is not dying of cancer…he is living with cancer and we are all enjoying every moment. We no longer worry about “how much time is left”, instead we realize how blessed we are to have been given the opportunity to “Live like we are dying” all together. If you ever feel the need to talk to someone …feel free to e-mail.
    Cheryl

    in reply to: Coping with the Pain #49029
    cldymond
    Participant

    Ashley:
    My husband is on Fentanyl Patchs (400 mcg) which is slow release and changed every 72 hours. He also takes 24 mgms of immediate release hydromorphone tabs every hour as necessary (usually twice a day). Before the Fentanyl patches, we were having trouble controlling his pain but everything seems good now. It did take a few days for the Palliative care team to come up with the correct dosage and it was constantly adjusted until he was only taking a couple of doses of oral meds a day. Good luck
    Cheryl
    P.S. On the Fentanyl patches Herb is not “dopey” at all…completely with it!

    in reply to: Happy 60th Birthday Dad! #48347
    cldymond
    Participant

    Jen: You said it all baby girl. Happy birthday to my wonderful husband. Love you …Mom (Cheryl)

    in reply to: Hope this helps others #48401
    cldymond
    Participant

    Lainy and Nancy:
    I so admire you both and only hope that, when the time comes, I will be as resilient and strong as you are! Time will tell … I am thinking of you both.
    Cheryl

    in reply to: Update on my sweetie, Doug. #48263
    cldymond
    Participant

    Nancy – Unfortunately, I do know what “blowing snow” is. Glad to hear that Dougs labs and overall wellness have improved. As you know, you and I (Herb and Doug) are very similiar in age, number of years married, grandchildren and much to my dismay, both our husbands have been diagnosed with “Stage 4 C.C.” This was not exactly the “Retirement Plan” that either of us expected but “it is what it is”!
    Herbs short term memory was also affected, especially when he was on Chemo. I am sorry to hear that there has been progression but glad they are going to continue chemo! Herbs disease has also progressed but not at a rapid pace. He recently had a repeat CT of chest, abdomen and pelvis and we see the oncologist Feb. 25 (will get results at that time). Please Nancy, keep us posted and congratulations on the engagement. Continue to enjoy, one day at a time! Every day is another for the “book of memories”!
    Cheryl

    in reply to: Dad is now at peace #48205
    cldymond
    Participant

    Andie: My sincere condolences to you and your family. Thank god for the pain free transition. Please know that love should never drag you down. In the coming days, I pray, that the memory of your fathers’ love for his family will fill you with warmth, surround you with light and propel you forward. Take care of each other and know that the prayers of others are with you all.
    Cheryl

    in reply to: My Husband and Cholangiocarcinoma – Part 2 #42198
    cldymond
    Participant

    Margaret – So glad to hear you and Tom are home!! Even in the frustration that new developments can cause, there is always light.Somehow, it takes a “little jolt” to make us aware, again, of how wonderful time at home with our loved ones is. There is a special peace at home. Enjoy !!
    Cheryl

    in reply to: My wonderful soulmate #47476
    cldymond
    Participant

    To All:
    Thanks for your warm welcome. I read, smile, laugh and weep almost daily as I read the posts. It is definitely a much needed outlet at times. Thank you all for your warmth, caring and sharing of your lives as caregivers, survivors and “afflicted”. I find myself feeling like you are all family.
    Cheryl

Viewing 15 posts - 1 through 15 (of 19 total)