cnbougey431

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  • in reply to: Where to go from here? #62710
    cnbougey431
    Spectator

    Thanks again for everyone’s support. I had scans conducted on Friday, things remain stable which seem to be a recurring pattern. Yet my tumor markers continue to rise-to 70,000. The CA-19-9. I think a change in chemo is needed. That is what worries me, I am currently on 5fu/Gem. I dunno how to understand this. My appetite is increasing again even with g-tube.

    Any of this good news?? Changing chemos again has me scared. I hope its just minor addition and subtraction…

    Keep the Faith.

    Trevor

    in reply to: Trying different chemos. #55771
    cnbougey431
    Spectator

    Hello,

    Marion- I just found out today about Wake Forest. They said no because I am considered too high risk because of the transplant. I didn’t know what the results would bring, there has been no evidence that it has worked for cc…

    Percy-Thank you for that information. So would Cisplatin/Gem not work because it is too similar to Oxali??? Have you read of any cases where they have switched from Oxali to Cisplatin after one had worked and vice versa?

    I also read in your previous post that Gem/Xeloda/Avastin would be a possibility. I know its different for everyone, but what would you say is the most logical choice if/when the Oxali were to stop working???

    Thanks again.

    Trevor

    in reply to: Trying different chemos. #55767
    cnbougey431
    Spectator

    Hello Cathy, I had a liver transplant 2 years ago due to cholangio. I went through the treatment protocol through Mayo in Jacksonville. I experienced recurrence last June, in my abdomen. I have come very far in 6 months, when I was I hospitalized and had a feeding tube stuck in me. I wish to continue my progress and combat this awful disease.

    I’m thankful to have a great support system.

    Thanks for your thoughts.

    Trevor

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