crb
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She was suffering badly with indigestion and she was put on medication called sucralfate which has eased the reflux and indigestion but belching and pain in her lower tummy seem to have taken over. I asked the question as to whether the oncologist had treated anyone with Mams condition before and he just said he’d seen it before but that he had no success treated it and that it’s not a cancer he would like his mom to have. No one has explained exactly how this disease progresses or what to expect I’ve never felt so lost in my life. I only really know information I’ve gathered myself in relation to this from research on the Internet.
Hi Lainy unfortunately my mam doesn’t have private health care and her medical card only covers public hospitals in Ireland. I wish I had the funds to get her care in the UK but unfortunately I don’t have the means to do this. So I’m left to fight with the medical profession here every step of the way so that can I keep my mam alive as long as possible
CRB wrote:Hi Marions
Thank you for taking the time to reply. My mam had metal stents put in just before chemo started the first week in December but she has always being in and out of hospital with infections every 8 weeks or so since her first bout of jaundice. Today she is complaining for the first time of pain, she says it’s like a stabbing pain in the bottom of her tummy anyone experience this and if so what might be causing it?? Mam has regular bowel movements everyday and eats small but regular meals. She thinks the porridge with flaxseed in the morning seems to set her off so she’s cutting that out to see if it makes a difference.
I take her temperature multiple times throughout the day and it’s within normal range. The Oncology doctor here discharged mam to the palliative care team so we don’t have any appointments etc anymore just the palliative care team try and manage symptoms with medication. The hospital won’t run any scans etc as they say there’s no point as no matter what shows up they won’t be chasing it so it’s not beneficial to either mam or them.
I’m at my wits end trying to deal with them all and in Ireland you don’t have any other options
