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Viewing 15 posts - 1 through 15 (of 45 total)
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  • in reply to: Meaning of absolute contraindication. #99123
    crissie
    Participant

    I work in clinical research.  Firstly they are saying that your father would not be a good candidate due to the stent and bile drain because of the reason you father needed them.

    A lot of time the inclusion criteria for the studies also includes the Investigator’s opinion that the subject would be a good candidate.

    It appears that they are saying though this is not an “exclusion criteria” for the study that they do not feel that you father is healthy enough for the trial and are concerned that if he starts this trial he could get sicker.

    Unfortunately the doctors have to make these calls.

    crissie
    Participant

    Interesting questions. I am responding about my 66 year old dad
    1. High Blood Pressure
    2. med for High blood pressure; had to get physicals yearly for his job and there was never an issue with anything else
    3. played golf, worked
    4. no special diet; he did smoke and drank alcohol
    5. no inflammation
    6. no cancer in the family at all

    in reply to: Planning with Cancer #92687
    crissie
    Participant

    Another thing….make sure you have a power of attorney set up. My dad had made me power of attorney so when he got really ill at the end, I could take care of things and access his funds to pay bills or what have you.

    Make sure your executor knows what to expect when you pass. Sometimes you don’t know what to expect…do you have cds, life ins through work?

    Make sure your executor or power of attorney knows about how much you think you have. That helps them plan for bills and or what to look for. Am I looking for 500 dollars or 50000? Do you have bills or loans that need payment.

    Make sure your power of attorney /executor is working for you. That is the person that will make sure you get what you need. I had to tell my dad’s “girlfriend” that she wasn’t getting any more money. Didn’t mind that but you need someone that will make sure you get what you need first.

    Also-if you are power of attorney and then they die, all access to accounts stop. I had to wait until the will went to probate to deal with any financial stuff.

    Be prepared….

    in reply to: My wife – aged 56 #91057
    crissie
    Participant

    Tony-

    I am so sorry. My dad passed away 2 years ago from this. Your story makes me cry.

    My heart goes out to you and your family.

    in reply to: Update #92194
    crissie
    Participant

    Hi Sharon-

    Once my dad started getting ascites it wasn’t very long before he passed. My thoughts are with you.

    in reply to: Cholangiocarcinoma #91996
    crissie
    Participant

    Hi. I know this is devastating news. My dad lived 1 yr after his diagnosis but everyone is different and there are new therapies every day.

    in reply to: Myeloproliferative Disorder #91183
    crissie
    Participant

    I know the doctors were going back and forth about whether it was leukemia or not….I think I am going to request his medical records.

    crissie
    Participant

    I hate how it made my dad feel like a failure and was putting his family through this.

    I hate how horrible it made my dad feel.

    I hate how my dad didn’t get to see how his only grandchild (girl) will grow up.

    I hate how it questions me….”can I have a glass of wine tonight or will I get cancer”.

    I hate how it makes me want to have a glass of wine a night. :)

    in reply to: Update #89209
    crissie
    Participant

    Duke-

    Your post moves me. I am reminded of my dad passing away from this horrible cancer.

    NOBODY should have to go through this but we play the hand we are dealt.

    My thoughts are with you.

    crissie
    Participant

    Your courage is admirable. You are a pillar of strength to us all.

    in reply to: Confusion over report #89417
    crissie
    Participant

    My dad was treated at Mayo. Palliative care means they don’t think they can cure the cancer. That is what they think or have experienced.

    The doctors told my dad that he would have 6 month without chemo and 1 yr with chemo. He did have to get his stent replaced about every 2-3 months and he did not have surgery. They were correct with his diagnosis although they could not really determine if he had leukemia also…I guess in the end they decided he did also have chemo.

    in reply to: Metastases on the peritoneum #88917
    crissie
    Participant

    My dad had mets to the omentum. That was not good at all. They will probably start with gem/cis.

    in reply to: 30 year old sister with advanced CC #86694
    crissie
    Participant

    Go to
    https://clinicaltrials.gov/ct2/search/map

    they have studies that are ongoing

    in reply to: Sensitive material #86308
    crissie
    Participant

    They didn’t even discuss surgery with my dad and there are people on the site that seem they were about the same as him and they had surgery.

    I don’t know how they decide.

    This just makes me angry.

    in reply to: So worried for my dad :-( #85979
    crissie
    Participant

    Toward the end my dad was like that. He would vomit all of the time but couldn’t eat. The anti nausea meds did not help….he would vomit bile. He would get exhausted really fast but couldn’t sleep.

Viewing 15 posts - 1 through 15 (of 45 total)