cristerry

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Viewing 15 posts - 16 through 30 (of 30 total)
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  • in reply to: Caregiver’s Bill of Rights #69166
    cristerry
    Spectator

    THANK YOU! Just today I was saying to myself, “I wish someone would take care of me.” (then felt guilty) My husband has started a new chemo regimen that includes 5fu. Along with a 5-6 hour infusion at the cancer center he has a bag that he takes home that infuses for 46 hours. Can any of you share your experience with this type of regimen?

    in reply to: Lauren is finally getting what we have hoped and prayed for. #68802
    cristerry
    Spectator

    I don’t post too much, but wanted to let you know how happy I am for you and Lauren. Look forward to hearing more good news for you. Lauren is lucky to have you. Would you please let Lauren know that she is in my thoughts and prayers every day.
    Cristerry

    in reply to: Swollen ankles #66723
    cristerry
    Spectator

    Hi, Lynn. Sounds like my husband is on the same tract. I did elevate his feet. They seem to have gone down a bit. Thanks for weighing in on this. Hope all is well with you
    ;)

    in reply to: Swollen ankles #66720
    cristerry
    Spectator

    Thank you, Marion. He’s laying flat right now so I’ll elevate his legs right now. Will keep you posted.

    in reply to: mandy #66255
    cristerry
    Spectator

    Hi, Mandy.
    You sound like a very brave, strong person. Sounds like you are in the care of a very competent Dr., too. I really wish you well in your recovery. Do you have good help at home?
    Welcome and all the best.
    Cristerry

    in reply to: Sleep, sleep, sleep #65885
    cristerry
    Spectator

    Thank you. I think he has broken thru the sleep phase. This morning his friend gave him a haircut. His hair has been falling out, but not in clumps. We then went for a ride thru our beautiful little town of Wickford and then to the beach for a look at the ocean which he loves having been a captain in the navy and owning a sailboat for years. He has chemo this week and next, so will watch how things go. He still takes compazene for nausea
    Again, Thank you

    in reply to: Sleep, sleep, sleep #65883
    cristerry
    Spectator

    Hi, Gavin.
    Thank you so much. Just breezed through parts of this and already know more than I did.
    Thanks or your good thoughts, too.
    Cristerry

    in reply to: Sleep, sleep, sleep #65880
    cristerry
    Spectator

    Hi, Pam.
    He is on gemcitabine and cisplatin. Thank you for sharing info about your daughter, Lauren. I truly hope you get your miracle.
    Cristerry

    in reply to: Cholangiocarcinoma Awareness #65807
    cristerry
    Spectator

    Thank you sooo much for sharing this video. I was thinking today that instead of getting presents for the holiday season we will be asking our kids and other familynmembers to donate to cc fund.

    in reply to: Fever #65256
    cristerry
    Spectator

    Got it. Thanks very much, Gavin.

    in reply to: Fever #65254
    cristerry
    Spectator

    What is Y-90?

    in reply to: New member #65282
    cristerry
    Spectator

    The word Jim was supposed to be him. Curse the spell check on my iPad.

    in reply to: New member #65280
    cristerry
    Spectator

    Have been trying to get Jim to drink more fluids. Gave him a Popsicle today. Almost immediately after he got the shakes (tremors) and was freezing for at least a half hour? Has that ever happened to any of you?

    in reply to: New member #65277
    cristerry
    Spectator

    Thank you all so very much. He is on ciaplatin and gemcitabine. His first day after chemo he seemed the best he has been for a long time. Yesterday and today, though, he is sleeping a lot and his energy level is waaaay low. Is this typical? Will this pass in the next few days? His next treatment is this Thursday.

    in reply to: New member #65272
    cristerry
    Spectator

    Thanks so much for your kind, welcoming words. Terry had not been feeling well since last may. He initially blamed it on an antibiotic had been given after some eye surgery. In July he had a regular chek with his GP who noticed he was turning yellow. This started the journey. Ct’s, MRI’s, blood tests, etc. We met with a cancer oncologist who explained they would use drains to release the bile, then, surgery and chemo, if necessary. The drains have been the worst so far. What was supposed to be day surgery to insert them resulted in a 5 day stay with them inserting a third drain. Then, home for a few days and a return for major surgery (they failed to remove the tumor) with another five day stay in the hospital. He has undergone interventional radiology to remove the drains and insert stents 3 times with the final try resulting in removing two of the drains. He started chemo on Thursday. So far so good, but the vn said his white blood count will be nil in a couple of days. I also noticed a round, bright red spot on his upper right back. ?? He is being treated at roger Williams’s memorial medical / cancer center in RI. His oncology surgeon is dr. Katz. His interventional radiologist is dr. Asanah. they are both tops in their fields and both have been trained at Sloan-Kettering. His chemo dr. Is dr. Armenia. Again, he is supposed to be on the cutting edge. I might mention, my husband beat prostate cancer. In 1993 he had his prostate removed and then radiation. He was just a young 50 years old. Thanks for listening. His diagnosis is Hilar cholangiocarcinoma.

Viewing 15 posts - 16 through 30 (of 30 total)