daleymom

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  • in reply to: It Finally Came #28771
    daleymom
    Spectator

    Just a little update. Dad is still doing well. On Tuesday this last week he had to have another surgery to put in some biological mesh because his abdominal wall was a little thin. Other than that he is doing really well. He will have to stay in the hospital until he is eating normal and having regular bowels. Unfortunately he was just getting to clear liquids when he had to have the second surgery so hopefully he will be able to start eating again this next week. He is such a fighter and a great example to all. I have yet to meet a person who didn’t think my dad cared for them completely. He is a friend to all and has had more support than I could have ever imagined. I think that is what made this cancer bearable.

    Oh, and the great news came a few days after his transplant from pathology…he is CANCER FREE!!!!!!!

    in reply to: Bracelets coming soon #26868
    daleymom
    Spectator

    I want them for my family too! Keep us updated!

    in reply to: waiting for a liver #26273
    daleymom
    Spectator

    Side note: MELD scores go from 6-40 with 40 being the worst.

    in reply to: waiting for a liver #26272
    daleymom
    Spectator

    Well, my dad’s MELD is now a 34. He is starting to get some ascites now though and that isn’t good. He may need another transfusion as some of the blood counts are struggling. He will remain in the hospital until a liver is available! I just hope and pray that we can some how benefit from the loss and tragedy of someone else and that their family will know that their loved one lives on. I encourage all to make sure they are organ donors…like someone (might have been on here) once said “We don’t need our organs in heaven, and heaven knows we need them here.” Love it. Hang in their Cathy and I will be praying for you as well! Keep us updated!

    in reply to: My visit to Mayo Clinic, Scottsdale, AZ #26863
    daleymom
    Spectator

    My dad also had Crohn’s. It has been very well controlled for 15 or so years. I think he might also be getting PSC but we didn’t know that until they tried to do the resection. Who would have thought it was all related. Hang in there!

    in reply to: waiting for a liver #26269
    daleymom
    Spectator

    My dad is also waiting for a liver. We are in Utah where they are also doing transplants after a strict protocol. Unfortunately he is taking a turn for the worse. We had a possible liver two weeks ago but after being taken to the hallway of the OR found out it was not acceptable. It is really hard. His MELD score is a 33 as of today. I hope that yours doesn’t have to get this bad. It is a horrible thing! Please pray for my dad and we will pray for you too!

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