darla
Forum Replies Created
-
Posts
-
Heartbroken,
Welcome to the site. I am glad you found us, but sorry for the situation that has brought you here. I too think it would be helpful to get a few more opnions.
You will find a lot of useful information here. Everyone here is so knowledgable & supportive and there are several members from the UK that may be helpful to you. This disease is relatively rare and also unpredictable. It affects everyone differently. One thing I would suggest is to make sure that your Dad is comfortable and not if pain.
I am so sorry that you and your family are having to deal with this. I know what you are going through as I have been there too. Try to stay strong for your Dad & Mom. Keep us updated and come back as often as you need to to ask questions or just to vent your feelings.
You & your family will be in my thoughts & prayers.
Darla
Hi Ron,
Welcome. I am glad you have found us, but sorry for what you are dealing with that brought you here. I don’t know much about s.i.r.t., but I am sure there are others here that will join in with help & information for you. You have found the best site to be on when dealing with this disease. Everyone here is so helpful & understanding. Please come back often and let us know how things are going for your wife. We are all here to support & help each other and we all know what you are going through as we have either been there or are dealing with it now. I will be thinking of you and your wife and hoping for the best out come on Thursday. I will keep you both in my thoughts & prayers.
Darla
Hi Sue,
Glad you are back on. I am so sorry to hear that you have had to suffer another loss. I know that Poppy was good companionship & comfort for you since Ray’s passing. It does seem as if one thing just leads to another & you have to wonder how strong does God think we are to keep piling these things on us. I know how much you will miss her. She was a good friend. I guess you have to think of it as now Poppy has gone to be with Ray, to keep him company. I hope that can be of some comfort to you.
I hope that this week will be better for you.
Love,
Darlahopeandgrace,
I am so sorry that things are not going well for your Mom and for what she is going through. My husband passed away only 7 weeks after his first symptoms, so a lot of what your Mom is going through we never experienced as his cancer was already so advanced by the time he had the first symptoms that he never really even had a chance for any type of treatment. It all went so fast we didn’t really even have time to think about it. He was diagnoised positively for the CC 1 week before he passed on.
It does all seem like too much & is so overwhelming to both the patient & the family, isn’t it? This disease is just so unpredictable. You never know what to expect next.
In your Mom’s case, I think you always have to have hope, but I do believe that her comfort is the most important thing. She needs to be kept as pain free as is possible. Just be there for her and give her your love & support. She needs your strength, so you need to take care of yourself too so you can be strong for her.
It does all seem like too much & is so overwhelming to both the patient & the family, isn’t it? I will keep all of you in my thoughts & prayers and will hope for the best for your Mom. Please keep us updated as to how things are progressing when you can. Come back whenever you need to just to talk or vent your feelings or whatever. We are all here to give you our help and support. We all know how your are feeling & what you are going through. We have all been there too.
Lots of Love & Hugs,
DarlaHi Ladies,
Just thought I’d check in and let you know I am also thinking of all of you.
I too take comfort in reminding myself that Jim is always near by even when I don’t feel that he is. I don’t ever want my memories of him to fade. I want to always be able to remember him as he was before this horrible disease took hold of him & took him away from me so swiftly & violently.
Grieving is not something we plan for or can learn how to handle. It just happens & we have to just try to cope & deal with it one day at a time. It is just so hard, with all of the ups & downs, but at least we can draw strength from each other as we are all traveling the same road.
Everyone take care & try to have the best day you can tomorrow.
Love & Hugs,
DarlaSuzanne,
Good Job! I think it is great they are going to do the PET Scan. I firmly believe that it is necessary when dealing with this type of cancer. I will be hoping for the best out come with the scan & also the tumor board. You will definately be in my thoughts & prayers. Let us know when you find something out.
Darla
Mary,
More good news. That is great. I think you are right, there are so many of us that weren’t as lucky, but we still appreciate hearing that there are some successes here and it does give hope to the newcomers. We all need to have hope and as you and Tom have proven & also Sue and others, there are some success stories to be found.
I also wonder why some do so well & others don’t. I guess it is just the luck of the draw. Somewhere here somebody posted something about why did this happen to us & then they thought why not us? I sort of feel that way too. Why us, but why not us? No one is more or less deserving it is just luck & genes. I also believe that we really have no control over any of this. When your time is up there is no going back. It is all in the hands of a power much greater than us. My best to everyone here. I will be hoping & praying for more good posts. I will also keep you all in my thoughts & prayers.
Darla
Ashlea,
You are right. You have so many unanswered questions right now. This disease is impossible to second guess, but it appears that you have been given so much conflicting and confusing information that at this point I think I would get a few more opinions before making any major decisions. Keep us updated when you can. I will be hoping for the best and will keep you & your family in my thoughts & prayers.
Darla
Jeff,
No suggestions, but hoping for the best results on what ever you try. You are in my thoughts & prayers.
Darla
Walk,
I have to agree. I would seek out more opnions, talk it over and then ultimately the decision will be your Dad’s to make. He is the only one who can decide what is right for him. Your Dad is lucky to have you there to help & support him.
Best Wishes,
DarlaHi,
I also admire your attitude & sense of humor. It is good to hear you have not had a problem with the chemo and also that you have the support of family & friends. Now you also have all of us.
My husband was also in Nam in the 60’s. He passed away last September from interaheptic bile duct cancer. He was 62. Many had thought there was a relationship to Agent Orange, however, I have been told it may have been caused by liver flukes which are parasites in the waters of the Asian countries. If you search parasites liver flukes on the site there are several posts on this. You may want to check into this further.
Welcome to our club such as it is and we will look forward to hearing more from you. The best of luck to you on your journey. Remember that there are a lot of wonderful people here willing and waiting to help & support you.
Darla
Ashlea,
Thanks for filling us in and remember that we are all here for you & your family, to help & support you on your journey with this very confusing & unpredictable disease. We are all only a key stroke away.
Love & Best Wishes,
Darla
Hi Sue,
Congratulations. No need for guilt or shame. I have to agree. There is so much sadness & pain on this site that it is always good to log on & see good news. I too am glad that you can put aside the fear of a reacurrance and live your life. Keep up the good work. I am hoping that everything keeps looking good for you. Cake would be good, too!
Darla
Ashlea,
Welcome. I am so glad you have found us, but so sorry you find it necessary to be here. You have found the best site to be on when dealing with this type of cancer. You have already gotten some great advice & will find that there is so much information here that it will be hard to comprehend and process a lot of it at first. The people here are the best in the world & no matter what you need they are here to help. Unfortunately this cancer is very unpredictable & treats everyone differently. It is hard to find, diagnois & treat. My husband was 62 and perfectly fine until 7 weeks before he passed away. Others here have had success with different types of treatment. The symptoms you have mentioned are “normal” for CC. It is a slow growing silent cancer that in most cases by the time there are symptoms and it is diagnoised it is already very advanced. As Marion suggested, getting more opnions would be a good idea. I am sure others will be offering help and information shortly. Search the site & ask all the questions you want both here & of the doctors. The more informed you are the better off you will be when fighting this terrible unpredictable disease. The fact that you are curious & asking questions is a very postive step in the right direction.
I will be hoping for the best outcome for your father, yourself & your family.
Darla
