darla
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darla
SpectatorLisa, I have to agree with the others. A second opnion is a good idea. It can’t hurt and may put your mind at ease with what is going on. I am so sorry that your lovely mother is also fighting this horrible disease.
Thinking of you and hoping you can get some answers.
Love & Hugs,
Darladarla
SpectatorNancy,
Beautiful and oh so true. Thinking of you.
Love & Hugs,
Darladarla
SpectatorThanks for posting this Tiffany. I am so sorry to hear of Jim’s passing. My thoughts and prayers go out to his family. He will be greatly missed on the CC boards.
Love & Hugs to Jim’s Family,
Darladarla
SpectatorDear Phil,
My heart breaks for you and Gerry. I’ve been where you are now and know how it feels. I am so sorry you and Gerry are going through this, too. Try to stay strong. It is all that you have right now to get you through this. My thoughts and prayers are with you both.
Lots of love and hugs for you both.
Darla
darla
SpectatorDear Mary,
I too am sorry to hear that your dad has lost his battle with CC. I know there is nothing to console you right now, but try to take some comfort in knowing he is now at peace and no longer suffering. Try to remember him as he was before all of this and keep him forever in your heart and memories.
Thinking of you and your family at this sad and trying time.
Love & Hugs,
Darladarla
Spectatormmking,
Welcome and thanks for sharing your mom’s story. She sounds like an amazing lady. I wish her and all of you caregivers the best and hope she continues on this path enjoying the planting and summer. Keep us updated as to her progress. Thanks for joining us . Although none of us would ever have wanted to need to be here we are all glad we found this wonderful group of the most helpful, supportive people. Take care.
Lots of love & hugs for your mom and all of you.
Darla
darla
SpectatorLovely Julia.
Thinking of you.
Love & Hugs,
Darladarla
SpectatorThanks for the update Percy and thanks for being there. I too hope you have some relaxation time. Say hi to Marion and give her a big hug from me.
Darla
darla
SpectatorCathy,
That is good news. Congrats! Hoping you will have many more to come.
Love & Hugs,
Darla
May 29, 2012 at 11:49 am in reply to: Through my husband, i join this very scary world of cholangiocarcinom #61421darla
SpectatorSusan,
My husband passed away less than 2 months from his first symptoms and ER visit. Until then he appeared to be a very active, strong, healthy person. Hardly ever even sick. He was 62 and we had been together for almost 45 years. I met him when I was 15. Together pretty much 24/7. Because he deteriorated so quickly there was no time for anything. He wasn’t even positively diagnoised with CC until 2 weeks before he passed. He never was able to build up enough strength for any sort of treatment options. The day he died I had been planning to take him home and was in the process of setting up home hospice. His was a very aggressive interhepatic cholangiocarcioma. Also at stage 4 when diagnoised. It has been almost 4 years and in that time I have seen a lot of progress and changes in diagnosing and treating this disease. It is very unpredictable and therefore no one can say what or when things will occur. Everyone is different. We never had a chance to do the things you are doing and I am so glad that although you are in a bad situation you are doing the best you can and making those memories. I’m sure it seems surreal to you, but I am happy you are able to do these things.
I also have 2 sons, in their 40’s. I’m in Plymouth, WI. Not that far from you.
I will be thinking of you this weekend as you celebrate Peter’s life. I am also hoping you will be making that trip to Chicago. As Lainy mentioned, you may want to try to get another opinion ASAP.
My best suggestion is to take things as they come. Live for today and take it one day at a time. Otherwise it will overwhelm you.
Take care.
Love & Hugs,
DarlaMay 29, 2012 at 2:31 am in reply to: Through my husband, i join this very scary world of cholangiocarcinom #61411darla
SpectatorSusan,
Just be with him, love him and share things. Make memories that will help you through all of this. I only wish I had been given the time to do all of that. Just do the best that you can. That’s all anyone can do. Your bitter sweet get together will mean more than you know to all involved.
Love & Hugs,
Darladarla
SpectatorHi Phil,
I’m sorry I don’t have the answers you are looking for but am hoping someone else will pop up soon to help out. Just want you to know I have been where you are and know what you are going through. Just want you to say I am thinking of you both and hoping for the best. Take care.
Love & Hugs,
DarlaMay 29, 2012 at 1:48 am in reply to: Through my husband, i join this very scary world of cholangiocarcinom #61409darla
SpectatorI too would like to follow Marion in welcoming you to our special group. I don’t have much advice to add, but agree that I too wish I had been lucky enough to do what you are doing. I think it is something that will always mean a lot to you.
We are a very interesting group with a whole lot of knowledge when it comes to this disease and know there will always be someone to help and support you and your family along the way.
Take care and stay in touch. Let us know how things are going.
Love & Hugs,
Darladarla
SpectatorDear, Dear Julia,
Something made me come back here tonight only to find your post. I am truely sorry for your loss, but your words are so true. Atleast she is no longer suffering and is now free. There is some comfort to be had in that.
I know exactly how you are feeling right now, but as the reality of it all finally sinks in know that we are still all here for you.
May Susan now rest in peace. All my love to you, your mom and all of those who love and cared for Susan.
Wish I could give you a big hug and lots of support, but will be sending it to you in my thoughts.
With Loads of Love & Hugs,
Darladarla
SpectatorDearest Julia,
My heart breaks for you and your family. I am hoping that Susan will be kept comfortable and calm. Wish I could be there with you, just know that lots of strength, support, love, thoughts and prayers are coming your way.
Love & Hugs,
Darla -
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