darla

Brenda,

I’m so sorry to hear that Don passed away and you are now dealing with another death in the family. It is almost too much to bear. Know that my thoughts and prayers are with you and your family during this very sad and trying time.

Keep Don in your heart and memories. He will always be with you. I know it is not much of a consulation for you right now, but atleast Don is no longer suffering or in pain. Hopefully you can take some comfort in that.

Take care and be safe in your travels.

Love & Hugs,
Darla

Oh Julia,

I just saw this post and am so sorry that you and your sister are going through all of this. Believe me I know how it feels. You are strong and a great advocate for your sister. Keep fighting for her and for yourself. You are both worth it. Know that I am thinking about both of you. Lots of good thoughts and prayers coming your way from Wisconsin.

Love & Hugs,
Darla

Dear 4neil,

I am so sorry for your loss and felt so badly for you while reading your post. I’ve been where you are and truely know how you are feeling. Unfortunately this disease is so rare it is often misdiagnosised until it is too late. I too found this site a few days after my husband passed away from this disease.
You have come to the right place for help, support and understanding. It is all so unfair, but know you are in a safe place here and everyone has been touched by this disease in one way or another. You have every right to be angry and confused. We are all here to help and support each other. Come back often. Try to take comfort in knowing that Neil is now in a better place, no longer suffering or in pain and he will always be with you in your heart and memories. Nothing or no one can take that away from you.

Love & Hugs,
Darla

Dear SandT,

I too am sorry to hear of Ed’s passing. My thoughts and prayers are with you and your boys at this sad and trying time. Try to remember all the wonderful years you had. Those memories will keep him close to your heart. Take some comfort in knowing that he is now at peace. No longer in pain or suffering. You and your family have my deepest sympathy.

Love & Hugs,
Darla

Phil,

Thanks for taking the time to let us know how things are going. I know exactly what you are feeling and going through right now. As Marion said, I can only reiterate, pain control is the most important thing right now. There is no reason for Gerry to be suffering or in pain. Can’t help you as far as the Gabapentin hopeful Percy or others will be able to give you more info on that.

My heart and thoughts are with you both.

Love & Hugs,
Darla

Dear Wilma,

I am so sorry to hear that your husband is not doing well. Unfortunately, there are some of us on here who have had similar experiences. I didn’t find this site until a few days after my husband passed away. He was one of the unlucky ones. He also appeared to be very healthy but passed away 2 months after his first ER visit. I do hesitate to post this as I do want people to have hope and many are fighting this disease rather successfully. Jim died in 2008 at the age of 62. Since I have been on this site I have seen many changes and many people who have been doing much better with surgery and treatment. I too sometimes wonder why that couldn’t have been our situation, but I guess in his case it just wasn’t meant to be.

You have every right to be angry and please feel free to vent all you want. We all understand and are here to help and support each other. Try to stay strong. I know it’s not easy, but it’s all we’ve got.

I will be hoping for the best for your husband. Take care Wilma. Know I am thinking of you. Please keep us updated on how he is doing.

Love & Hugs,
Darla

Dear Arujain28,

You have my sympathy and understanding. I am so sorry you have lost your father to this disease. This disease is so unpredicitable and sometimes just sneeks up on us before we even know what the heck is going on. Please do not feel badly for how things went. You did the best you could with the situation as you understood it. It sounds to me like you loved and cared very much about your father and I am sure he knew that, too. Try not to dwell on what might have been. Remember him as he was before CC. Keep those memories alive and he will always be with in in your heart and memories.

Please feel free to come here often to share your feelings. Many of us have had similar experiences and know and understand. Take care.

Love & Hugs,
Darla

Pearlie0201,

I am so sorry to hear of your dad’s experience and his passing. Unfortunately it is a story too often heard on this site. CC is a very unpredictable disease and often hard to discover and diagnois.

My heart goes out to you and your family for what you have experienced and the pain and grief of your loss. Yes, it is horrific, but try to take some comfort in knowing that your dad is now at peace and no longer suffering or in pain.

My thoughts and prayers are with you at this sad and trying time.

Love & Hugs,
Darla