derkuchen

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Viewing 7 posts - 16 through 22 (of 22 total)
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  • in reply to: Semi-newly diagnosed :D #26838
    derkuchen
    Spectator

    Thank you so much everyone! You’re all such nice people =D <3

    PCOS (polycystic ovarian syndrome) is an endocrine disorder that like, 10% of all women have. It’s a leading cause of infertility and it effects hormones in the body, so people who have it produce more testosterone than estrogen and it makes a whole mess of problems. =(

    in reply to: Pardon the game of 20 questions #26953
    derkuchen
    Spectator

    Thanks so much everybody!! Today went well, they said my tumor marker went from 6000 to 300, so that’s good right? I really don’t know what that means but my mom said she was happy about it. But my blood levels were low so I had to get this shot to make bone marrow make more red blood cells. It really burned when it went it so that stunk. =( They told me to go on a diet high in iron so I’ll have to give my mommy a shopping list, haha.

    The Gemzar went over well so far, it didn’t hurt going in or anything. I guess we’ll have to wait until the next couple visits to see if I have any reactions to it. Though while I was having it, I think I *imagined* a metallic-y taste in my mouth. I’m not sure, how weird of me. I also asked the nurses about ports and they gave me a packet about it, I thought it would be good to ask just in case. =D They said only if my veins harden so I hope that doesn’t happen. They showed me how it gets put in and I’m just not keen on getting sliced up again just yet, y’know? lol.

    Thanks so much again everyone, you’re all in mine and my family’s prayers. <3

    in reply to: Pardon the game of 20 questions #26947
    derkuchen
    Spectator

    Thanks for all the help Pam and Marion! A port is okay to have for CAT scans and stuff right? I always forget they ask that question on the survey thinger they give you. I’ll ask my mommy about it, definitely. And yay, Disney! I’m so happy now, lol.

    You’ll all be in my prayers. <3

    in reply to: What to expect post surgery #18950
    derkuchen
    Spectator

    Oh man, Dr. J did my surgery too. I thought it was worth noting for anyone else who happened to check this thread, he’s the best if you’re going to Sloan Kettering! <3 And his nurses were always so helpful when I called the office afterwords freaking out about stuff, lol.

    in reply to: Semi-newly diagnosed :D #26829
    derkuchen
    Spectator

    You guys are all so nice! I feel special. :D Thank you so much everyone for the warm welcome and the birthday wishes. I’m doing my best to stay positive and active; I have so much left to do, I can’t stop yet! And I’ll beat it for everybody else who couldn’t. I was wondering, is there an awareness ribbon for CC?

    It does seem odd for my age, my surgeon told me he really couldn’t tell me why I had this since normally older people have it. My mom was joking with me (at least I think she was joking) that I was gonna be in the American Journal of Medicine for it, lol. I was like, “Err, maybe not.” Either way, I hope I can kick it’s butt. Thank you all for the support again, I’ll be certain to be around!

    in reply to: Semi-newly diagnosed :D #26821
    derkuchen
    Spectator

    Thanks so much Tess! I feel a lot better now, after spending 7 or so hours in the hospital today.. I’ll definitely stick around and update you guys. I hope I learn enough so I can help other people too! =)

    – Katie

    in reply to: Semi-newly diagnosed :D #26819
    derkuchen
    Spectator

    Well my dad’s uncle (he passed from cancer a few months ago) always taken pride in us being German, so I looked up some vocabulary. Since I like to bake, “the cake” stuck and that’s been my username for a couple sites I go on. =D

    According to the papers I got today, I’m supposed to get.. Gemzar? Gemcitabine? Lol sorry, new to all these terms. I’m supposed to get that intravenously for about 6 months (3 weeks on, 1 week off).

    And I’m trying to not be a wimp after this surgery! It’s not my first but surely the most major one yet. I’m raring to go back to work already since I’m on medical leave from school with nothing else to do.

Viewing 7 posts - 16 through 22 (of 22 total)