dexter1

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  • in reply to: Extreme edema from ankles to abdomen #15056
    dexter1
    Spectator

    My husband has had the fluids in his abdomen drained twice in January 07
    He was so bloated and this should have been done much sooner, We complained
    of this for three months and nothing was done. We finally had to go to the
    emergency room for the procedure. They removed 6 liters, He then went back
    in ten days and they removed 5 1/2 liters. It has been a month and he has very
    little fluid build up. He also had swollen feet and legs. I was told that was not
    related to the fluids in his abdomen. He has been on Spironolactone 50 MG
    1 a day and Furosemide 80 MG 1 a day, for one month. His swelling has gone
    down and he can actually get his tennis shoes on after wearing slippers for
    five months. Before that he was wearing support socks which did little.

    He was diganosed Nov. 05 and did forty treatmens of XL119 and then two
    months of Tarceva. Dec 27th our Dr. took him off the Tarceva and told us
    to get Hospice. We found another Dr. and now have a combination of four.
    He is on no Chemo as it did little good. We are just managing the pain which
    has only been in his Shoulder from the begining. He has cc in both lobes of
    the liver, and the left lung. His bile ducts are clear and open although it is
    call Bile Duct Cancer. If I had to do it over I would have done no Chemo as
    this is a very slow growing cancer. The Chemotherpy has destroyed him and
    x-rays of his bones show bone damage from Chemotherpy in his arms.
    We were told we don’t have much time left, but we will keep moving on…

    in reply to: Tarceva #14813
    dexter1
    Spectator

    My Husband has been on Tarceva for two months. Has had no new side effects.
    He had 40 treatments of xl119 /5FU study first and was pretty exhausted going
    into Tarceva. He had a CT scan today but we will not get the results until 11/22.

    He was diganosed 10/10/05 with Cholangiocarcinoma Bile duct that spread to liver and then spread to the Lung in July 06 so had to come off the Clinical Study He had
    5 to 10% shrinkage in May on the xl119 5FU but then found out it had spread to the lung in July o6.

    We had a choice of Tarceva or Cisplatin and Gemcitabine, hoping for less
    side effects we went with the Tarceva.

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