All- thank you for your thoughts and comments. It does appear to be a very confusing disease. We will continue to be active in these discussions to learn from you all and to share our sons experiences.
He has been diagnosed with intrahepatic CCA where the left and right hepatic ducts join to become the common hepatic duct and the term Klatskin tumor has been mentioned. It may be a stage III or B and even IV.
The MRIs and CT Scans have not been conclusive but indicate that there is a 3cm ill-defined mass in the lateral segment of the left lobe.
What tests are best to “see” this tumor and are there any special protocols that should be used.
Thank you for your support- Fred