diana4453

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  • in reply to: Cholangiocarcinoma #78548
    diana4453
    Spectator

    Is there anything that can prepare me for what is to come ? What are some effects that I should be watching for. I know fatigue and no energy and appetite change are to be expected but what will come next. There seems to be no answers. I’ve heard it is aggressive and move forward quickly, not to mention the pain some experience. I’m trying to plan ahead for his care but I am in the dark on some things.

    in reply to: Cholangiocarcinoma #78545
    diana4453
    Spectator

    Hello everyone, checking in, hubby has had his CT scan, blood work tomorrow , then consult on Friday. He seems to sleep a lot in the last few days
    and talks of being so tired. His blood sugars have been really strange for a while now. I haven’t changed his diet nor the way I prepare his food. They are really dropping into the low ranges so I have been holding the insulin back. I’ve never encountered this before. Strange how some concentrate solely on the diabetes and suggest putting him on a strict( hold the white diet) . They don’t realize this drop in blood sugars is connected to the CC. They freak out because I let him lick the peanut butter fudge spoon telling me that I am being irresponsible in my care for him. How much time he has I do not know but I sure am not going to let him be miserable while he is still here. I still am caring for him as best I can but a little pleasure now and then never hurts. Hoping to finally get some info Friday from ONC.

    in reply to: Cholangiocarcinoma #78530
    diana4453
    Spectator

    St Vincent in Indianapolis IN

Viewing 3 posts - 1 through 3 (of 3 total)