dianneh
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Went to see our oncologist yesterday and showed him the print out about Nanoknife. He almost threw it on the floor as if it was junk! Kinda ticked me off that he would have attitude like this, don’t know or care if he was ticked that I was presenting something or questioning the hospitals capabilities, could be that’s it’s because he thinks he knows everything, I don’t know, not impressed.
Anyway, he finally said that there is often a disclaimer at the bottom somewhere that talks about stats and info on trials etc, not being available, and gives good cause to brush it off.
Well heck! If we had that attitude about chemo/rad where would we be.
Scraggles, sorry to hear about your Mom. Have not meet Dr. Knox, but meet with Dr. Hedley, boy he’s a real character. I think it’s a good thing that your Mom is a candidate to receive gem/cis, they obviously think she’s physically strong enough to handle it.
Maybe we will cross paths at PMH, we will be there April 13, for the follow up CT and then again on April 21 to see Dr. Hedley. How about you?
Dr. H said that they see about 100 cases of bile duct cancer per year; it’s a relatively rare cancer; about half the cases respond to chemo/rad; without treatment, some go on for only a few months and others go on for years; some dye from the treatment, while others have been cured by it. It’s a 50/50 draw that I wish we all did not have to deal with.
Do not forget, no change is good news too. It just my need a little more time. I have every reason to believe that your mom will do well, I’ll be thinking about you.
Jennifer, I believe your Dad’s age is a BIG plus for him. What cocktail are they giving him, how often, and when will they do a follow-up CT?Like I said no change is good news too!
Thank you all for your kind words and prayers, it is very comforting to know that your all here for us.
There is a lot of information out there, but I’m very surprised that the Canadian Cancer Society had very little to almost nothing about bile duct cancer. Although it is mentioned in the liver section, but is not at all found if you do a CC search. I think this needs to be changed and will contact them about it.
For the moment my Dad is waiting to get the metal stent put in, scheduled for April 7th, but due to the shade of yellow he’s been emitting the last few days it will likely be sooner, we see the gastro this afternoon. Don’t want to go through the infection again, it could kill him too.
An on going comment from all the medical staff we’ve seen, is that they can’t believe my Dad is 81, he looks good for his age! I think it’s the beef he’s packed on since he retired 16yrs ago. He really is pretty good considering, although since the blockage showed up his appetite has changed, he feels full a lot, wants to eat his favourite foods but then only eats half of what I put on his plate and does not want more, highly unusual. This is very disturbing to me, since we love to cook and eat, although it just maybe a saving grace that he has those extra pounds to spare.
Dr. Hedley (oncologist) told us that my Dad may just receive Gemcitabine, the Cisplatin maybe to powerful for him and cause further damage to other organs and cause worse side effects. I think Dr. Hedley is thinking that lets play it by ear, see how he tolerates Gem, and see if it even does anything to the tumour, and in a few more weeks have another CT and see if there is any change, if there is no change then leave him alone for now.
Again it’s up to my Dad, but he will likely just do what the Dr’s. tell him.
Either way I’m happy that’s he’s still here and in relatively good health and still independent.
Dianne
