donna-l

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  • in reply to: The New Brochures have arrived! #23522
    donna-l
    Member

    I would like some brochures to distribute. Until our family was faced with this dreadful disease we knew absolutely nothing about it. Please let me know what information you need in order to send them to me.
    Donna

    in reply to: CA19-9 levels #23316
    donna-l
    Member

    Hi – I am also a new user to this website. My father was recently diagnoised with bile duct cancer which is considered a very rare cancer. He is 79 years old. He was sent to Piedmont Hospital in Atlanta, GA and seen by Dr. Roshan Shrestha who performed a ERCP test using a new system called a Spyglass Visualization system. We were told that his CA19-9 was 1427 and the tumor is in the common bile duct, it is in the final stage, surgery is not an option, chemo will probably not have any affect, and radiation might. That he should get his affairs in order and hospice would be available when the time comes. I can not imagine what my father felt when we were told this. I know that as his daughter is was very devastating to all who was present.
    However, he started radiation treatments yesterday in Rome, GA – will be taking 25 treatments. At the same time he is starting oral chemo treatments using the drug, Xeloda. All this is new to our family and we would appreciate any feedback on this.
    We do know that prayer does make a difference.

    Donna

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