douglof
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August 10, 2010 at 12:27 am in reply to: primary biliary cirhosis & cholangiocarcinoma & glass bead radiation #35773douglofMember
Hi Rick … It’s been quite some time since I submitted my wife’s situation. She’s been told by the experts at university of washington medical center that her condition is such that if they removed the tumors, there would not be enough liver left to allow her to survive. it’s been 27 months since her surgery when they removed some of the tumors. At that time she was sent home for palliative care in that cholangiocarcinoma at the stage she was in was deemed hopeless. I know there is always hope. She gets very tired and all that but somehow remains cheerful.
Doug
February 19, 2010 at 1:24 am in reply to: primary biliary cirhosis & cholangiocarcinoma & glass bead radiation #35770douglofMemberHello Lainy, You’re indeed right reference retirement. We’ll check out Cyber Knife with the surgeon at the University of WA Medical Center and see what he says. He informed us two days ago that Margie cannot withstand surgery. She has 5 tumors in the left lobe. They would have to remove 5 golf ball sized sections of tissue to reasonably expect to get all the cancer. 21 months ago he (James Park MD) removed 2 sections of tissue of the above mentioned sizes and the cancer has returned in those areas. Thanks again Lainy. I’ll check the search machine.
Doug in Edmonds WA
February 18, 2010 at 11:15 pm in reply to: Blood DNA testing for tumours and responsiveness to treatments #35775douglofMemberThanks Gavin, I just read the article . The way they sequence things these days, maybe it’ll happen much quicker than 5 years. It is difficult to determine which course of action to take at this time with Margie. At the very least there is information here. Thanks again
February 18, 2010 at 10:08 pm in reply to: primary biliary cirhosis & cholangiocarcinoma & glass bead radiation #35766douglofMemberMy mistake … the tumors were not golf ball size. That was the size of the tissue ablated. The tumors were described as nickel sized.
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