dukenukem
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My experience is that tumors in the liver may give you some discomfort at the bottom of the rib cage on the right side.
Could it be heart burn from eating? Or, maybe try lighter foods, like some soups. Or smaller meals more often, stopping before she gets the feeling of being full.
In any case, Gavin has the right idea, get to her GP to check things out.
Duke
Gavin –
I’m thinking the weeks in Arizona must be calculated differently than they are in the rest of the country, plus Scotland. It’s probably only five days long because they don’t count Saturday and Sunday since everyone is either playing golf or tennis and that doesn’t count.You know, we could make up posts pretending to be Lainy and see if anyone notices. That would certainly bring her back, if nothing else than to save her reputation.
“Hello from Shangri La. Decided to take a quick vacation here to recover. Glad I can put the colitis behind me. But it’s so boring here. Nothing but chicken soup with matzo balls. Can’t get lasagna or any pasta. Not that I don’t think of anything besides food. There’s cliff diving, hang gliding, and white water rafting. Not sure how I will fit them all into my schedule. There’s bingo with the Catholics, line dancing with the Baptists, pot lucks with the Methodists. It’s almost overwhelming for a Jewish girl from Minnesota.
TTFN,
Lainy”Duke
I just figured out what you are planning. You’re going to be super nice to Admissions, even the pre-op team (always a good move to be nice to people with needles). But once you wake up and they start giving you orders, look out for the real Lainy to emerge. YOU will be giving THEM orders! And Robin will play the innocent in the background.
Busted, Lainy. Maybe I should contact the hospital now and warn them. Or, just sit back and wait for your stories.
Duke
Make sure it is a genuine Gucci or or Coach or something else Prada, no knockoffs permitted.
We’ll be praying for the surgical team as well as you. You have the easy while they work hard. And then Robin works hard while you can be Cleopatra for 2 months. Maybe we should add her to our prayers.
Duke
Nikole –
I am being treated by Dr. Davendra Sohal (he is treating 15-20 patients with CC and similar liver cancers) at the Cleveland Clinic. I also met once with Dr. Bassam Estfan from the Clinic. Both are very dry, almost removed emotionally, but I have good feelings about them. They strike me as very knowledgeable. My previous onc was at the Seidman Cancer Center in Mentor, OH. She specializes in women’s breast cancer. That Center has seen only 4 CC patients in the last 3 years. She has run out of treatment options and nothing else to offer. Dr. Sohal had a possible trial (my platelets were too low to get into it) but also two more chemo options, one of which I am using now.
I never got the info I requested about University Hospitals and their CC experience.
I would not rule out Mayo in Mn or MDA in Tx (Dr. Javle) as places for second opinions.
Duke
Aiste –
Your father has everything going for him. Small tumor, diagnosed early, no metastases, a great attitude and a loving daughter. Don’t despair – in addition to all those things in Lithuania, you have the support and prayers of everyone in this group. Look at every day as a miracle and live every day to the best your father and you, can.Duke
Suggestion:
Make sure you have an idea how much tissue is stored and where it is stored.I had an adventure getting my excess biopsy material transferred from my local clinic to the Mayo Clinic. Mayo then used it all and I had to have another biopsy done to remove a lymph node to send to FoundationOne for genomic testing. Thank goodness for insurance. This may not be an issue if Sloan is going to do it all.
Duke
Great idea, but how enforce it, especial;y for old studies? And, I really hate to say this, how do you force someone, like a big pharma who has paid for an entire study, to release information? Folks, this is business, and business has secrets – proprietary, classified, call it what you will. The government does it and uses taxpayer dollars to pay for it.
Way to heavy for this early.
Duke
Marion –
Unfortunately, this only underscores the importance of early detection by checking for serum markers (alk-phos and associated carbohydrate antigen (CCA-CA) on a regular basis. Which requires that people need to understand the importance of this. More so, MDs and DOs need to make this a priority, especially when alk-phos goes up they need to check for CCA immediately. Which raises the costs for the insurance companies then for the insured.
Duke
According to Nasra from Mayo Clinic, this is an extension of the earlier information gathering by Dr. Lewis Roberts. For those who already filled that form out, there is nothing to do.
Duke
I’m a patient. When I was first diagnosed, my onc said if I did not take chemo I would be dead in six months. Surgery and radiation treatments were not options. Since then I got a second opinion on treatments. And I’ve gone to a third onc who has experience in treating CC. My first onc had no more treatment options but the second one has at least two.
I’ve been doing chemo since July 2013. For now I’m fighting as hard as I can. I also realize there will come a time to recognize that my treatment options are gone. And I will have to deal with that , talking with my wife. In my case chemo was the best answer.
As for the prognosis, contact Lainy. She has a list of knowing when the end is near and will be happy to send it to you.
Duke
Surgery is the only option for a cure, so it should be pursued if at all possible (my opinion). If I had the chance for surgery, I’d be in the OR prep room in a heartbeat asking for a surgical gown.
Duke
