dznr1234
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I wanted to add that to me my case has been very confusing. I was diagnosed at UVA/Charlottesville, VA. The gastroenterologist/oncology called the cancer Cholangiocarcinoma. The surgeon that decided I couldn’t have surgery called it Ampullary Carcinoma. A # of others have called it Pancreatic Cancer. If I ask a doctor what it is I usually get a different answer. The doctor in charge that diagnosed the problem & the doctor in charge of chemotherapy call it Cholangiocarcinoma. This is the only one that more than 1 doctor uses. Has anyone else run into this? The only thing I know is I wish it wasn’t any of them!
I will stay in charge of the cancer. The cancer will never be in charge of me!
Thank you Lisa, Marions & Kris for your great replies. The stents I had were plastic. The 1st one was removed via ERCP & May 5th I had another ERCP to have the 2nd one removed & the doctors couldn’t find it. It had come out by itself & probably had passed through me. The reason I was given that they couldn’t be left in was if they stayed in too long there was risk of infection. I do know I feel like a different person when I have a stent in.
Marions stool softener has become part of my regular routine also. I use one with a laxative & still use glycerin suppositories at times. I have pain at anytime but it seems to always happen after I eat. My ducts are blocked also when the stents are not in. Will call the doctor today to see if it is possible for me to get a stent that can at least stay in a while. I tell all the doctors about my pain when I speak to them. So far I was told to just take pain meds which help but I hate the way they make me feel. I think I am going to have to take them but it sure does go against my grain.
Lisa the “Rubber sure has hit the road” around here. Loved this one! I am so glad you do have wonderful parents & children that help you get through the day. Did you have the Whipple procedure? I couldn’t have it but from all I have read about people that did I don’t know if this is a good thing or a bad thing.
I can’t tell you how much I appreciate all 3 of you responding. This is the first time I have talked to anyone who knows anything about this type cancer & I can see already that it sure does help tons!!!!!
Hope you all have a great day & thanks again,
Ellen
