Elenapa7

Hi Chris,

I am sorry to hear of your Mother’s diagnosis. We must live near. By Brother was diagnosed with left intrahepatic cholangiocarcinoma in August 2018. We initially were at Henry Ford but at that time Diagnosis was unclear.  My brother went to UofM and was diagnosed there. He had an extensive 13 hour surgery (Not whipple as pancreas was not involved) which entailed left liver resection and hepaticojejenostomy. We were very pleased by the hepatobiliary surgery team there , his surgeon was Dr. James Knol.  Unfortunately pathology showed positive microscopic cancer in 1 lymph node, staging hime stave IV N1, M0. We were not as impressed by the oncologist at UofM and decided to get a second opinion at Memorial Sloan Kettering NY by Dr. Abu-Alfa. He and his team were Excellent and if you are able to get in in to see him I highly recommend it. My brother had no visible growth after surgical resection, therefore was not a candidate for a clinical trial.  Based on Abu-Alfa’s recommendation, we decided to meet with Dr. Philip Phillips at Karmano’s Cancer Center, which is where my brother is currently receiving his chemo.  We are extremely pleased with Dr. Philips and the entire staff (just saw him yesterday, his apts and chemo are on Tuesdays). He is currently in his 3rd cycle of Gem-cis and tolerating it well. Has first imaging scheduled October 13th, praying that no growth is found.  Please let me know if I can help with anything. Hang in there, its a long road and very frustrating at times. I recommend keep searching until you find a medical team that you feel very confident and comfortable with.

Elena