Eli
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I’m quoting from NCCN Guidelines for Cholangiocarcinoma, one of the most definitive medical resources on CC.
The section on risk factors says:
“No predisposing factors have been identified in most patients diagnosed with cholangiocarcinoma, although there is evidence that particular risk factors may be associated with the disease in some patients.”
This is consistent with what I read in many other medical articles. Most CC patients do not have any known risk factors.
It’s true that PSC is a strong risk factor for CC, but I think it’s wrong to say that most CC patients have it.
I don’t know anything about it. I just want to post a few links, for the reference.
Wikipedia article on TH-302
http://en.wikipedia.org/wiki/TH-302TH-302 clinical trials
http://clinicaltrials.gov/ct2/results?term=TH-302PubMed articles that mention TH-302
http://www.ncbi.nlm.nih.gov/pubmed/?term=TH-302Searching PubMed for TH-302 and CC doesn’t return any results.
Hi Colin,
I’m a caregiver for my wife. She is the one with CC. She had her surgery here in Ottawa at The Ottawa Hospital.
Dr. Fady Balaa investigated my wife’s case when her symptoms showed up.
Dr. Richard Mimeault did the surgery. We picked him based on the recommendations from our family doctor and a family friend who is an operating nurse at the hospital.
Both these surgeons are very familiar with CC. They see a large volume of patients with the cancers of liver, pancreas and bile ducts.
I believe you need a referral from a physician to arrange your first consultation.
The Ottawa Hospital – Liver and Pancreas Clinic
Main Line: 613-761-5015
Office Manager: 613-798-5555 ext. 17498
Assistant: 613-798-5555 ext. 13900Best wishes,
EliMy wife’s oncologist told us that CTs are better than MRIs for lung imaging.
In fact, he might have said “much better”. It’s been a while so I don’t recall how exactly he worded it.
Hi Tiff,
This is exciting news! I like those odds. Sending tons of positive thoughts your way.
Hugs,
EliHi Susie,
Marina is doing great, thanks for asking. She is back to work full time as of December. She goes to the office every day.
Her digestion and plumbing are fine, as long as she sticks to home cooked, comfort food. She has to watch her portion sizes. She feels discomfort occasionally when she overeats or grabs something unhealthy. She is very disciplined about it though, so it doesn’t happen very often.
Marina regained most of her old weight but not all of it. Her face rounded out very nicely… BIG contrast to how she looked 12 months ago when she finished chemo.
Like you, she takes proton pump inhibitor (Pantoprazole) for acid reflux. As a Whipple patient, she will be taking it for the rest of her life. Aside from PPI, she doesn’t need any medication. She takes some self-prescribed supplements and vitamins, but they are optional.
Marina still has her port, 12 months after chemo. She goes to the hospital once a month to flush it. I’m not sure when she will find the courage to take it out. I don’t ask. I want her to make up her own mind without feeling any pressure. You’ve been there so you know the trade-offs.
As far as exercise goes… we are looking forward to the start of the cycling season. Marina can ride a bike despite her surgical hernia. She cycled daily last summer and fall.
Susie, I’m glad to hear that you are able to run. That’s a great sign. Keep up the good work!!
Best wishes,
EliYou learn something new every day. Today I learned why oncologists use stethoscopes. I always found it odd when they examined my wife with a stethoscope.
Thanks, Susie.
Hi Aticon,
The medical paper linked below describes the link between Lynch syndrome and CC.
Hereditary Pancreatic and Hepatobiliary Cancers
http://www.hindawi.com/journals/ijso/2011/154673/Here’s the relevant paragraph from the paper:
Quote:3.2.1. Specific Diseases with Inherited Predisposition for Bile-Duct CancerIn a cohort of 472 patients from 15 different families with HNPCC, cancer of the biliopancreatic tract was seen in 18 patients, 11 (79%) of which were confirmed as arising in the biliary tree or ampulla of Vater [87]. Despite a >9-fold increased risk of bile-duct cancer in patients with HNPCC [88], routine screening for bile-duct cancer has not been recommended [89], owing in large part to the difficulty in detecting these cancers and their rarity.
HNPCC refers to Lynch syndrome. This paragraph answers two of your questions:
1. Lynch syndrome dose raise the risk of bile duct cancer.
2. Routine screening is not recommended.My wife’s tumor got tested for Lynch syndrome after her surgery. The result was negative.
