emmahann24
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Hi sorry to hear about your husband, my mum is 59, otherwise healthy apart from having CC the onc said they had ruled surgery out and only treatment available is metal stent that she has had put it then to start chemo in the next two weeks we have agreed to go ahead but I’m petrified we have agreed and we have made the wrong choice even though we don’t have to go ahead as mum seems not to bad at the min, yeah if you don’t mind can u send me the list that would be great thanks again
Hi thank you everyone for getting back to me,
Gavin I feel better that there is someone to talk to that has been in the same situation as I’m going through right now, I will speak to my mum about edinburgh, but my mum still won’t open up proper and talk to me about the cancer she crys then when I asked her about talking to me she tells me not to dwell on it, I’m stuck in a rut to be honest. The hospital has never mentioned anything about Macmillan or where we go next although my mum does have a hospital app in dunfermline on Thursday afternoon, Who would I ask for an opinion about Edinburgh?
Can I ask, this is the first app we have had since she was diagnosed, do you have an idea on what will be discussed at this app at the oncology clinic? My mum has also started to burp all the time is this to do with the cancer?Thank you again for taking the time to reply to me, Emma.
Hi thanks for replying to me, she was being treated for jaundice at the victoria hospital Kirkcaldy, that’s where they put the metal stent in and later removed the drain as the stent was doing what it was ment to. We were asked to go in on march 17th which I went myself thinking she was going for an opp in edinburgh to put an internal drain into her liver which they had discussed with us the previous Tuesday to get rid of bile, but I went into the hospital and me and mum were taken into room and told that while putting drain in they had taken a biopsy which neither of us were told they were doing that(explains why mum was in so much pain after) and found she had cholangiocarcinoma and that it was a very rare cancer that has went to lymph nodes and basicly if they operated on it there is a chance surgery wouldn’t work as apparently they can open her up and not be able to do anything, when I asked more on the cancer the staff nurse in the room with us went and got a bit of paper and brought it back into the room and wrote it down on paper and told me to google the cancer and find out more info on it, which I think is horrendous , after a week after diagnosis she was aloud home again on the day of discharge she was in the day room, before I got her I went to staff base and it was the same staff nurse on the day with the paper I told her I had done some research and wanted to no if there was anything I needed to do all she said was the community dietician would be in touch with a referral from them in her discharge papers(which may I add the referral has not been made,nearly three weeks after discharge)and I asked how long she had left and she wouldn’t tell me just to let her enjoy what’s left I also asked her if inside or outside liver and she didn’t no and again told me to research I’m deeply frustrated as I do not no anything about it all I no is we got this devastating news about a cancer I didn’t no existed and basically been left to it, we have got a letter through to attend oncology on Thursday afternoon but dreading it as don’t no what to expect my whole life has been turned upside down in the space of weeks and when I’ve asked the doctors none of them to give me useful information. I haven’t even got a clue what stage it’s at but suppose it’s the worst stage with them saying let her enjoy what’s left , thank you again for replying to me and I’m grateful that I have found this page, thanks again, Emma.
