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Catherine, I stopped Cisplatin in mid-Sept. due to neuropathy. Once the platinum cleared out of my system (about 90 days) I felt much better. Less chemo-brain & fatigue. So far the Gencitabine is working on its own.
How are you doing?
I marvel that I am doing so well….going to NY Auto Show today with my adult daughters. FUN!
Matt, send me an email venice711@gmail.com with your phone and I’ll give you a call later today. If you need a place to stay near NYC we have room.
EricI was diagnosed in Dec 2012 with stage 4 CC and am being treated at MSKCC. Chemo started in Jan. with Gem/Cis and after 2 consecutive CT scans at 3 & 6 months the tumors have not grown or spread. I have also had a 2nd opinion from Jefferson University Hospital who confirmed diagnosis and agreed on treatment as best available. It has been tolerable and is working.
Lisa is so young to have to fight this, but stay strong and keep up the great research you are doing. Knowledge is power.
Eric
I have also had problems with white cells & platelets, and Neulasta shots after every 2nd treatment (2 weeks on Gem/Cis) 1 week off have helped. When platelets dropped too much I received an infusion of platelets, which fixed the problem. I go for blood work the day before chemo and have never missed a session…..too much to lose.
They did reduce the Gem by 10% to try to address the blood problems.
Hope this helps.
My sincere thanks to each of you for sharing and supporting. The will to keep on living, loving and working is very strong in me.
Pam, thanks for the kind words and sorry to hear about your daughter. I have 3 adult daughters and can honestly say I am glad I am dealing with this instead of one of them!
I am owner of a real estate office in central NJ so it is difficult to continue working while being treated. My team has provided a lot of support for me and my clients, so I can focus on what I need to.
I have lost a lot of wieght, but my appetite has improved and I am able to eat nutrious foods even though my taste is off most of the time. I have stabilized and we are happy with current situation…but I miss my glass of wine with dinner!
This is my week off chemo so if the weather improves I hope to get out a bit after snowstorm.
I have set a goal for living with this disease that far exceeds what my doctors are telling me is likely. I believe that I can live & enjoy life and will not let statistics get to me.
Eric
