Thank you Patty, Kris, and Lainy for your ideas. Lainy, we actually just got back from a trip to Mayo (decided to go even though they wouldn’t review records ahead of time). And we just scheduled an appointment with MD Anderson. We did get a second opinion closer to home since my original post (it has been a busy few weeks!) and are going to go with that doctor’s recommendation for the next round of chemotherapy. However there is a disappointingly low rate of success so we are also trying to prepare for what we will do if it doesn’t work.
Thanks again for your thoughtful responses.