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  • in reply to: Ideas to help pain during scans? #47984

    Thank you for your thoughts. I will see if the doctor can do something special with pain medication on scan days and also ask if a little pillow would be allowed. Thanks for your help!

    in reply to: chemotherapy/clinical trial advice #42749

    Thank you Patty, Kris, and Lainy for your ideas. Lainy, we actually just got back from a trip to Mayo (decided to go even though they wouldn’t review records ahead of time). And we just scheduled an appointment with MD Anderson. We did get a second opinion closer to home since my original post (it has been a busy few weeks!) and are going to go with that doctor’s recommendation for the next round of chemotherapy. However there is a disappointingly low rate of success so we are also trying to prepare for what we will do if it doesn’t work.

    Thanks again for your thoughtful responses.

    in reply to: chemotherapy/clinical trial advice #42916

    Hi Marion,

    Thank you so much for your quick and thoughtful response. I wanted to respond to you sooner but today was an eventful day (but mostly in a good way) in the quest for treatment options. Your feedback and support is very helpful. I was wondering if you could tell me more about the advocate that you mentioned. I’m not familiar with that type of role.

    Thanks again!

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