fellini03
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Thank you Kris. We are in contact with our local CSSS. They are providing us with a home care nurse that comes by to monitor my Mom’s vitals once weekly and a home care attendant who visits twice a week for bathing. That is all that the public system can offer at this point. We are now looking into hiring some private home care help.
Thanks to all for your advice. I will definitely speak to her specialist regarding stents and fluid drainage, as well as her diet. Although she was told that she can eat whatever she likes at this point, they’ve given her “Lax-A-Day” to be taken as needed. I was told that her jaundice was due to ‘her liver not functioning’ properly so I will mention this again to the physician. I was also told that her confusion was partly due to the morphine that she is taking and hepatic encephalitis – which again is a “normal progression of the disease” and nothing can be done. Getting a second opinion will be difficult due to the long wait to see a specialist. We have a public healthcare system which has many benefits but also some disadvantages – one being having to wait months see a specialist. My Mom is presently living ‘independently”. She lives in an apartment above me so I am with her in the evenings and week-ends. She is lucky to have a large circle of family and friends who come by regularly during the day while I am at work so she is rarely home alone. Hopefully Mom can be made more comfortable. I am glad I found this forum. Thanks again….
Thank you all for the warm welcome and for your suggestions and recommendations. My Mom was being followed by an Oncologist at the Royal Victoria hospital in Montreal but seeing as she will not be treated with chemo or radiation, they referred her to the Montreal General’s Palliative Care Unit. My Mom’s bilirubin levels are elevated. They gave her an ultrasound and determined that she did not have a blockage and, as she is not vomiting and has regular bowel movements, then a stent would not serve any purpose. They also said that she may have to drain her fluids at some point but not yet. We were also told that all of her symptoms are a “natural progression” of this disease. We see her doctor next Monday. I will ask about a stent again and having her fluid drained (are these painful procedures?). Thanks again….
