fhlformom

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  • in reply to: New Diagnosis: Faith Hope and Love for Mom #88528
    fhlformom
    Member

    Darla and Debbie,

    Thank you for your kind words. This website is truly a Godsend. I live in Alaska, and my mom and a lot of the family are spread out from Georgia to Texas. Thankfully, I made it down to the lower 48 last week before she got her diagnosis. I say all of that to say that I’ve searched this website and read through so many of the posts. There is so much encouragement and hope. Both of which my mom needs. She told me today that she is extremely fatigued with barely enough energy to move from the bed to the couch. She is still bathing herself and using the restroom on her own which are both good. I just am in the process of getting the ball rolling, and anxious to see her get back up on her feet sooner rather than later.

    Duke,

    You my man are the Legend. Quite honestly, it was looking back at and reading through your initial posts on this website that caused me to register and post my mom’s story. I don’t know who created this website, but it has turned out to be a “one stop shop” for the much needed information, planning, and encouragement needed to propel my family and I into action. Anyways, I wanted to say a personal thanks to you Duke for being an inspiration.

    I know in the days, weeks, months, and years to come we will all will have ups and downs. I just don’t want my mom to be scared, upset, and feel like there is no hope for tomorrow. Now though there is hope! A lot of it! :) I simply want her to have quality of life, to be healthy, happy, and content. But in reality isn’t that what we all want?

    Because my mom’s story parallels yours in your initial posts in so many ways, I felt an instant connection that caused me to explore all of the other wonderful journey’s on here.

    To Everyone,

    To be honest, I didn’t expect such an awesome responses from everyone so quickly. Words alone cannot express how important your positive words and reaching out to my mother, I, and the family have been. Thank you all so much. I will keep everyone updated on MDA as well as contacting Dr. Chapman. My biggest fear is that they will reject her referral after they receive her records. It’s hard for me to do, but I know that I must give it all over to God and know that He has taken care of everything. He will open the right door for her just as he has for so many of you and your loved one’s.

    I think tonight will be the first good night’s sleep that I’ve had in quite some time. Good night everyone. Enjoy this awesome week ahead!

    Jason

    in reply to: New Diagnosis: Faith Hope and Love for Mom #88523
    fhlformom
    Member

    Cathy,

    Your response brought the first tears of joy that I’ve had in several days. My heart skipped a beat when you mentioned hope, as your response definitely is hope! :)

    Cathy and Lainy,

    Thank you so much for the words of wisdom. :)

    I have started the referral process at MDA in Houston. They said that they will get her medical records, and have already verified her insurance. I will also contact Dr. Chapman tomorrow to see what he says. All fingers and toes are crossed. My mother needs a physician that has a heart and a treatment plan for both short term and long term success. I will also contact Mayo to get the ball rolling with them as well.

    It truly feels like we are turning the corner and I know that the right door will open.

    Lainy,

    Thank you for the recommendation on Sarna. I will look into it. I hope both you and Cathy don’t mind me looking through your many posts. They along with the countless others on here have given such insight, hope, and much needed strength. From the bottom of my heart thank you.

    With much Faith, Hope, and Love for Mom, and a whole lot of positive thoughts for us all,

    Jason

Viewing 2 posts - 16 through 17 (of 17 total)