formydad
Forum Replies Created
-
Posts
-
Wow! 25? God bless her. I spoke with my mom this evening and told her I had met you on here. She couldn’t believe how young your daughter is. How unfair? I’m so happy to hear the approach you have taken toward this nasty cancer. I did go to the blog you have set up for this fight. It was nice to read about everything you are all doing. Your daughter has a great support group.
Some more info on my dad and his treatment.
He has liver and bile duct cancer. The tissue of origin test came back from California and they still can’t determine where it started????? The drugs they are using in his trial are 5-Fluorouracil, Gemcitabine (sp), and Cisplatin (which you mentioned). They have also found cancer on his 5th lumbar and on a rib (they’re not concerned about it because it’s not primary). His doctor is Fakih Marwan. Supposedly, the nurses are amazed at my father’s blood levels and don’t understand how he is sick with levels such as his???? I finally asked the question of the stage….ugh. My mom said they didn’t tell her a stage but she is assuming at least stage 3. She also informed me that it is in the lymph-nodes surrounding the liver so after all my reading I would say it is stage 4. But just like you and your family, we don’t want to know (I kinda do, just the way I am).
They’re ready to fight it and reading stories like your daughter’s is very uplifting. I’m all about positive thinking and kicking butt! My parents are at U of M for chemo next Thursday…if you happen to be there. My dad is about 6’3″ 265 (used to be) maybe 240 now and my mom is short in stature, red curly hair (short) and very friendly and talkative. I know you mentioned your daughter likes to close the curtain but if you happen to feel like talking they’ll be there. I told her your name and your daughters (hope you don’t mind), small world.
I will keep your family in my prayers. Thank you for all of the info.
Susan,
I am sorry we had to meet here but you will find support. I’m not sure if you had gotten a second opinion but my father who was diagnosed with CC in May, started at Beaumont in MI and he is now at the U of M. He has started a clinical trial and both he and my mom are very happy there. If you google U of M clinical trials for bile duct cancer you will find information. I will be happy to help you in any way I can. Stay strong, and take minute by minute!
Hi Pam,
Nice to meet you! I am sorry to hear about your daughter but it’s almost been a year since diagnosis, that’s great! My parents seem really happy with U of M. I’m glad you feel the same way. It’s difficult being far away and not hearing “all” the information they are given. How was your daughter diagnosed, stage, and effects from chemo? How many treatments has she had? How do you feel about the clinical trial? Thanks so much for answering questions, this is all so new!
PS-I’m sure I’ll have more!
Happy Tuesday,
My dad had his first chemo session (7 hours at U of M) on Thursday. He went home with a port for Friday and until evening on Saturday. A visiting nurse came and unhooked the port. He goes for blood work on Thursday. I spoke with him and he said he felt fantastic (doctor said he won’t feel side effects of chemo until session 2 or 3). He and my mom seem to be doing well and happy. He sounds a bit weaker on the phone and said he had hiccups for three days since chemo (anyone know if hiccups are a side-effect). My brothers went to visit for Father’s Day and ended up feeling happy they did. My sis-in-law told me my one brother didn’t’ want to go because he didn’t want to see him. My SIL told my brother not to put him in his grave yet?!?! I don’t understand that kind of thinking. He is fighting it and staying optimistic. We can only take a day at a time.
