frank2112

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  • in reply to: Update on wife’s CC #90847
    frank2112
    Member

    One last post…

    My wife, Heidi, lost the fight against CC on April 21, 2016. The Keytruda treatment was not effective and she went downhill fast.

    She was only 44 and my heart is broken. I pray that someday soon they will find a way to put an end to this horrific cancer.

    frank2112
    Member

    My wife started a Keytruda trial 4 weeks ago. She has received 2 infusions. This past weekend she had some severe pain and went to the emergency room for get checked. They admitted her and did a CT. She wasn’t too happy with how they were handling everything and her oncologist got her moved over to his hospital (BJC in St Louis). We brought the CT scan from the first hospital and it was read at BJC.

    We went to see the oncologist today and he gave us some terrible news. The tumors had grown considerably since the initial scan 4 weeks ago and she would be taken off the trial due to progression. He gave my wife 6 more months to live.

    We went back to the oncologist later in the day to ask if it was too early to see results from the Keytruda. He said it was out of his hands and was up to the trial doc. A few minutes later the trial coordinator showed up and said he spoke to the trial doc who said she could continue the trial but only if the IRB okayed it. We should know in the next couple of days what the IRB says.

    He mentioned Folfox was still an option. I believe immuno is better than chemo and haven’t given up hope on staying on the trial and this was just a setback and we just need a little longer.

    Has anyone had any luck with Keytruda? Has anyone had a major setback before seeing improvement?

    in reply to: Update on wife’s CC #90844
    frank2112
    Member

    Molecular testing has been already been done on the large tumor (nothing on the smaller tumors in the liver and nothing done in the lungs) and the oncologist says she has nothing remarkable, but it could be become useful in the future.

    in reply to: My wife #89999
    frank2112
    Member

    We are at Barnes-Jewish’s Siteman Cancer Center currently under Dr. Singh, but thanks for the name drop. My wife has said she’d like a second opinion.

    Oh, and my wife is only 43 years young (and a feisty redhead)!

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