gale918
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Tess: I agree that you need to be soooo pro-active. It takes ONE doctor to smile and say, Yes, lets try this. Keep me posted.
My RFA is scheduled for January 5th. I’ll be paying for the surgery for the rest of my life. I am preparing for the External Review with the New Hampshire State Insurance Commissioner. It’s a board of doctors, I was told and I have a 50/50 chance of getting my refusal reversed.
I found days when I was eager to search for information and then there was days I just took a break and had a “normal” day. Don’t let this research exhaust you. Your Mum needs someone to cook her dinner, clean the bathroom or play a game of scrabble with her. Chat later.
Marc: I did have a liver resection last year. My tumor was 9 cm. and it did invade the Infererior Vena Cava. I was a good health. No jaundice though. I have recovered from the surgery. It was a hard road. I was very tired. It took a year to get back to work full time. I’m glad I did have surgery. You didn’t say how old your Mum is. I was 57 last year. My vote is for surgery. The liver regenerates. I had about 3 inches of my vein removed and replaced with synthetic material. I’m on an asperin per day to keep the blood flowing. This website is full of great information. You will be in my thoughts. I’ll check back later. Gale
I am going through with the RFA. The hospital will get a monthly check for the rest of my life. I think I will go through with the external review. That way if we decided to sue in the future, we can. I’m waiting for a date for the surgery. I called the State Insurance Commissioner’s office and she said that IF this external review rules in my favor, then the insurance company will reimburse me for the surgery. Chat later.
I spoke with the hospital yesterday. I’m going ahead with the surgery without insurance. I don’t want this density to grow to the point nothing can be done. I’ll just give them so much per month. I will get in touch with my Senator to let her know about this. I’m waiting for the hospital to get back with me with a date for the surgery. Chat later.
Thanks so much for the encouragement. I see the oncologist today. I want to see what she can do to help.
Well, talking with the doctor at the insurance company didn’t work, so the surgeon is taking it to the next level. Chat later.
THANK YOU for your responses. I received an email from the surgeon and he received the news on Friday. He has already put in for a review. From the wording of his email, he does this all the time. Carol, I’m so sorry to hear about your situation. I personally know our State Senator and I will keep that in mind. I’ll keep you posted. Chat later…
I got a letter yesterday stating that the ablation was not approved by the insurance comapny. Cholangiocarcinoma was not the the insurance doctor’s “cheat sheet” for this type of surgery. Hepatosecullar carcinoma, yes, but not cholangiocarcinoma. I’ll be making phone calls on Monday. Since the doctor does this surgery once a week, he MUST run into this situation all the time. I’ll find out Monday.
