gambit

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  • December 4, 2015 at 2:56 am in reply to: Advice Needed: Drs Recommend Whipple But Are Unsure If I Have CC #90629
    gambit
    Member

    Thanks for your input Marions and Lainy. I’ll follow up with the scheduling department tomorrow. I was trying to go with Dr Nakakura there, but is there anyone else there that would be a great go-to?

    Also, I know this may be a tough question, but how long would be a reasonable time to wait for UCSF?

    December 3, 2015 at 7:05 pm in reply to: Advice Needed: Drs Recommend Whipple But Are Unsure If I Have CC #90626
    gambit
    Member

    Thanks Marions and Lainy. The records have been ordered and I should have them by the end of week at the latest. Even if Kaiser doesn’t cover the surgery my wife’s PPO plan (Blue Shueld I think) should cover it minus any deductible. The only problem with UCSF is it may take longer to get in so I have to decide how much time I can lose. Thank you both for your help!

    December 3, 2015 at 5:59 pm in reply to: Advice Needed: Drs Recommend Whipple But Are Unsure If I Have CC #90623
    gambit
    Member

    You responded so I had to ask! Lol. Just got off the phone with my Kaiser surgeon and he said he would give the edge to Stanford over UCSF even though both are great. So with that in mind I grew with you that I should move the appointment up. Even though my Kaiser surgeon says I should have the surgery this month he agrees that an external second opinion is good to have.

    December 3, 2015 at 5:07 pm in reply to: Advice Needed: Drs Recommend Whipple But Are Unsure If I Have CC #90621
    gambit
    Member

    Humor is really important, Lainy. Better to laugh than cry about it. My appt with Stanford is on 12/16. I could get in earlier but I was going to try and Kaiser to pay for a second opinion. Chances are slim but I thought waiting another week might be worth it? Do you think I should just go ahead and take the earlier appt?

    December 3, 2015 at 4:10 pm in reply to: Advice Needed: Drs Recommend Whipple But Are Unsure If I Have CC #90619
    gambit
    Member

    Thanks Lainy for your words of encouragement. For my second opinion I have scheduled a consult with Dr Jeffrey Norton at Stanford and am waiting for the scheduler at UCSF to get me in with Dr Eric Nakakura. I’m sure both places are outstanding but is there one that’s better at CC than the other? I’m super thankful that my wife signed us up for PPO through her work, even though it doesn’t start till 1/1.

    I know CC is hard to diagnose, but I was so hopeful that the FISH and CA-19 negative results would put me in the clear. The other thing that bothered me about Kaiser is them not even exploring anything besides the Whipple or trying to do further testing. They haven’t even referred me to an oncologist.

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