gatorjake
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I have received news that biopsy result from the second procedure is negative again (brushings from ECRP. Also negative for immune disease. The readings from all scans point to CC with the tumor encapsulating hepatic artery and narrowing the portal vein. We really need to get a good biopsy but I am concerned that piercing the tumor from the skin could release cells into other areas of the body. Has anyone else had difficulty getting sufficient biopsy results?
Hello all, Just an update….I have definitely felt an improvement but we’re just not sure it’s as dramatic as it should be. I ate a decent breakfast this morning but some of the recent nausea was still there and I really had to force myself to eat dinner tonight. In addition, there is still some itching but my color especially in my lower extremities seem to be coming back to normal. The doctors want to see one more lab to make sure we’re trending in the right direction. It’s still possible I could leave here tomorrow with a PCT collector, not desirable but I’ll do what I need to do.
We’ve also decided to head to Sloan-Kettering in New York for another opinion. Hoping for the best!
Dave
Sorry Marion, I didn’t answer your question. Yes, we have had the ERCP and CT and imaging is consistent with CC.
Hello everyone, a bit of an update…I went back to my original Endoscopy physician at MUSC as I felt he wanted another crack at the stents (and I like him and feel comfortable with his confidence). We drove up from Savannah. A CT scan was perform and he saw a significant blockage remaining. Based on the imaging that we received,, the left lobe of my liver is atrophied and not functioning well and the right side is where the significant blockage is/was.
He scheduled the ERCP and told me going into it that he was hopeful but not overly optimistic that he would be able to get the stents into where they need to be and stated that if not, a PTC bag procedure with a drain tube may be necessary and that would be a separate surgical procedure.
Fast forward, we just came out of the procedure and he was able to get three stents in where there were two. He felt encouraged that he was successful but has recommended that I stay overnight , which we chose to do. The thinking is that we will get new labs, we’ll see if the itching has stopped and if not and we still needed to do the OTC, I am already admitted and in town for the procedure tomorrow..
As a side note, the doctors are having a difficult time with getting a good biopsy. The results from the first one came back inconclusive. If they didn’t get good material today, they may have to go in from the side and pierce it and no one wants that for a lot of reasons.
Dave
